Grieving While Chronically Ill and “Childless Not By Choice”
Overcoming Obstacles | Taking care of yourself

Grieving While Chronically Ill and “Childless Not By Choice”

I’ve gotten to know Sarah Malm over the past year or so. She and I are running a Spoonie Coworking Space. She’s a fellow spoonie and an artist who creates lovely greeting cards. We were discussing our experiences of being Childless Not By Choice and I suggested she write this post for me. When it…

Safe at Work: Disclosure and Protection
Increasing your independence | Strategizing for success

Safe at Work: Disclosure and Protection

This is Michele’s second guest post on my blog – the first also focusing on the disclosure process. She is also part of the Spoonie Entrepreneur School, and is closing out the virtual summit with her talk “Making work work for you” at 12 PM EST today! “Well, I hope you can do the job,”…

Moving Through Medical Trauma
Strategizing for success | Taking care of yourself

Moving Through Medical Trauma

Nicole interviewed me for her Spooniepreneur podcast a couple of years ago, and we’ve clicked. When she suggested collaborating by cross-posting on one another’s blogs, I jumped at the opportunity. We both wrote about medical trauma from our own personal experiences. My post on her blog came out a few days ago, and Nicole and…

Celebrating Pride Weekend as a Queer Disabled Woman
Social connections | Strategizing for success

Celebrating Pride Weekend as a Queer Disabled Woman

I have been living with Functional Neurological Disorder for the past 20 years. I also realized that I was bisexual about 19 years ago. After I joined BiRequest several years after coming out, I was invited to participate in the Heritage of Pride March in New York City. I loved the experience of marching through…

Traveling with a disability: car travel
Increasing your independence | Strategizing for success

Traveling with a disability: car travel

While some health conditions prevent disabled people from driving, many others don’t. What disabilities prevent driving and which don’t can be surprising. There are many accessibility features available today to allow wheelchair users and people with other mobility limits to drive despite their presumed inability to do so. There also are many advances in automated…

Planning in recovery time after losing last summer to Covid-19
Strategizing for success | Taking care of yourself

Planning in recovery time after losing last summer to Covid-19

2020 was a rough year, and I’m recognizing the different pressures I’ve had, many of which were caused or magnified by Covid-19. I’m recognizing that while I’ve managed to do a fair bit this past year, I’m now a bit fatigued and low on energy for self-care as well as resistant to following the routines…

A Third Reconstruction: How this House Resolution should help the disabled community
Social connections | Strategizing for success

A Third Reconstruction: How this House Resolution should help the disabled community

As I’ve mentioned in previous posts, I’m an active participant in the New Jersey Poor People’s Campaign. I want to share with you the most recent activity of the campaign and explain both its significance and how it helps us, the disabled community. The Poor People’s Campaign along with House Representatives Barbara Lee and Pramila…

Flying with a disability
Increasing your independence | Strategizing for success

Flying with a disability

You absolutely can fly while managing your condition! While there aren’t generally travel discounts (airlines are private companies), there are rules to help you travel safely, referred to as the Air Carrier Access Act. Your carrier’s services should provide you with supports for your trip, but it is your responsibility to let them know that…