Demystifying Health Insurance
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Demystifying Health Insurance

Health insurance is a big scary topic in the US, and one that leads many people to just back away. Coverage tends to be very complicated in this country and feel overwhelming for everyone who could, should, or might get health insurance. For those of us in the disabled community, health insurance tends to be…

Poor and disabled: Participating in the Poor People’s Campaign’s Activism with a Disability
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Poor and disabled: Participating in the Poor People’s Campaign’s Activism with a Disability

I’ve been active during the time I’ve taken off from posting. One of my biggest efforts was a multi-day trip to Washington, DC to join the Poor People’s Campaign in a push for congressional reforms through civil disobedience. We had a simple set of demands for the Senate, which has, of yet, been unfulfilled. Our…

I Did It My Way! Directing Your Wellness Journey
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I Did It My Way! Directing Your Wellness Journey

I met Katie a year or two ago. As she and I discussed our health experiences, I found myself especially fascinated with how she discovered LDN and how helpful she’d found it. As she shared her experience of negotiating her treatment with her doctor, I thought it would be a great piece of experience to…

Grieving While Chronically Ill and “Childless Not By Choice”
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Grieving While Chronically Ill and “Childless Not By Choice”

I’ve gotten to know Sarah Malm over the past year or so. She and I are running a Spoonie Coworking Space. She’s a fellow spoonie and an artist who creates lovely greeting cards. We were discussing our experiences of being Childless Not By Choice and I suggested she write this post for me. When it…

Safe at Work: Disclosure and Protection
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Safe at Work: Disclosure and Protection

This is Michele’s second guest post on my blog – the first also focusing on the disclosure process. She is also part of the Spoonie Entrepreneur School, and is closing out the virtual summit with her talk “Making work work for you” at 12 PM EST today! “Well, I hope you can do the job,”…

Moving Through Medical Trauma
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Moving Through Medical Trauma

Nicole interviewed me for her Spooniepreneur podcast a couple of years ago, and we’ve clicked. When she suggested collaborating by cross-posting on one another’s blogs, I jumped at the opportunity. We both wrote about medical trauma from our own personal experiences. My post on her blog came out a few days ago, and Nicole and…

Celebrating Pride Weekend as a Queer Disabled Woman
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Celebrating Pride Weekend as a Queer Disabled Woman

I have been living with Functional Neurological Disorder for the past 20 years. I also realized that I was bisexual about 19 years ago. After I joined BiRequest several years after coming out, I was invited to participate in the Heritage of Pride March in New York City. I loved the experience of marching through…

Traveling with a disability: car travel
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Traveling with a disability: car travel

While some health conditions prevent disabled people from driving, many others don’t. What disabilities prevent driving and which don’t can be surprising. There are many accessibility features available today to allow wheelchair users and people with other mobility limits to drive despite their presumed inability to do so. There also are many advances in automated…

Planning in recovery time after losing last summer to Covid-19
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Planning in recovery time after losing last summer to Covid-19

2020 was a rough year, and I’m recognizing the different pressures I’ve had, many of which were caused or magnified by Covid-19. I’m recognizing that while I’ve managed to do a fair bit this past year, I’m now a bit fatigued and low on energy for self-care as well as resistant to following the routines…