Systemic racism and ableism in healthcare
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Systemic racism and ableism in healthcare

Let’s start with the terms themselves. Systemic racism is a deep-rooted issue in the US, and one that many conservatives don’t want to admit even exists. When it comes to our broken healthcare system, racism is one of many ‘isms’ buried within it. Ableism is also a systemic issue, and one that is deeply entrenched…

Health Insurance Plans and the disabled community
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Health Insurance Plans and the disabled community

October through December is Open Enrollment season for the US Health Insurance system. This is the time when people can choose, change, or adjust their healthcare plan. With about 55% of the population covered through private employers, this is when employees have the right to examine their options and select the offered plan that best…

Demystifying Health Insurance
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Demystifying Health Insurance

Health insurance is a big scary topic in the US, and one that leads many people to just back away. Coverage tends to be very complicated in this country and feel overwhelming for everyone who could, should, or might get health insurance. For those of us in the disabled community, health insurance tends to be…

Poor and disabled: Participating in the Poor People’s Campaign’s Activism with a Disability
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Poor and disabled: Participating in the Poor People’s Campaign’s Activism with a Disability

I’ve been active during the time I’ve taken off from posting. One of my biggest efforts was a multi-day trip to Washington, DC to join the Poor People’s Campaign in a push for congressional reforms through civil disobedience. We had a simple set of demands for the Senate, which has, of yet, been unfulfilled. Our…

I Did It My Way! Directing Your Wellness Journey
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I Did It My Way! Directing Your Wellness Journey

I met Katie a year or two ago. As she and I discussed our health experiences, I found myself especially fascinated with how she discovered LDN and how helpful she’d found it. As she shared her experience of negotiating her treatment with her doctor, I thought it would be a great piece of experience to…

Grieving While Chronically Ill and “Childless Not By Choice”
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Grieving While Chronically Ill and “Childless Not By Choice”

I’ve gotten to know Sarah Malm over the past year or so. She and I are running a Spoonie Coworking Space. She’s a fellow spoonie and an artist who creates lovely greeting cards. We were discussing our experiences of being Childless Not By Choice and I suggested she write this post for me. When it…

Safe at Work: Disclosure and Protection
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Safe at Work: Disclosure and Protection

This is Michele’s second guest post on my blog – the first also focusing on the disclosure process. She is also part of the Spoonie Entrepreneur School, and is closing out the virtual summit with her talk “Making work work for you” at 12 PM EST today! “Well, I hope you can do the job,”…

Moving Through Medical Trauma
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Moving Through Medical Trauma

Nicole interviewed me for her Spooniepreneur podcast a couple of years ago, and we’ve clicked. When she suggested collaborating by cross-posting on one another’s blogs, I jumped at the opportunity. We both wrote about medical trauma from our own personal experiences. My post on her blog came out a few days ago, and Nicole and…

Celebrating Pride Weekend as a Queer Disabled Woman
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Celebrating Pride Weekend as a Queer Disabled Woman

I have been living with Functional Neurological Disorder for the past 20 years. I also realized that I was bisexual about 19 years ago. After I joined BiRequest several years after coming out, I was invited to participate in the Heritage of Pride March in New York City. I loved the experience of marching through…