About 2 weeks ago I discovered that I had written a LOT more than I realized. While writing and editing, I was struggling to navigate the gigantic document I have, and I discovered a feature on Google which allowed me to divide the book into a collection of separate tabs, which I could move around…
Hi! Sorry I’ve been so quiet, I’ve been deep in editing the book and a bit overwhelmed by watching my government lean hard into authoritarian behavior while creating an aura of trauma and fear throughout the world. I believe my book is even more important and necessary than ever before, even as I worry about…
It’s been a week since our new president has been sworn in. And just as many of us(including me) have feared, things are decidedly NOT “business as usual”. There are always is a certain amount of hand-wringing and anxiety around a change in presidency, especially when it also is associated with a change in party….
Thriving While Disabled: Navigating Disability Finances I know that I haven’t written another post in way too long. I do apologize for this, but it’s been for a variety of good reasons. But at the most basic, life happened in a way that drew my focus away from writing posts, and I had less time…
I’m once more participating in A Chronic Voice’s writing prompts. This month’s words are: summarizing, crossing, moving, rebuilding, and expecting. I’ve been thinking about writing about pacing for a while now, and these words felt useful for that process. When the summary is too short So to summarize what most doctors tell their patients: “You…
This post is a response to Sheryl Chan of A Chronic Voice’s October writing prompts. This month’s terms are: disabling, enabling, committing, communicating, and reinventing. The first time I heard of Covid-19, my niece brought it to my attention. It was late December 2019, and she showed me a news article discussing this new virus…
For many of us who become disabled, the recognition and acceptance process isn’t easy, and all too often, employment and disability are inextricably linked. For many of us, part of becoming disabled is losing our employment. The grief and loss of becoming disabled is often entangled deeply with the loss of income, and often the…
Functional Neurological Disorder is a common but poorly understood condition. Being diagnosed with Functional Neurological Disorder isn’t just overwhelming for you as the patient, but it also can be a challenge for your doctor as well. The symptoms look like neurological symptoms(each FNDer may have a different symptom set), but don’t have the usual causes…
When writing my post about stress-related medical conditions, I went down an intellectual rabbit hole that I wanted to highlight: the stresses involved in being a minority of any kind. People tend to immediately categorize all they engage with as either “like” or “other”. They connect with those who are like them, and view the…
Let’s start with the terms themselves. Systemic racism is a deep-rooted issue in the US, and one that many conservatives don’t want to admit even exists. When it comes to our broken healthcare system, racism is one of many ‘isms’ buried within it. Ableism is also a systemic issue, and one that is deeply entrenched…