Managing doctor care during this lull in Covid-19
Strategizing for success | Taking care of yourself

Managing doctor care during this lull in Covid-19

I don’t know about where you live, but here in New Jersey, we’re experiencing a decrease in Covid-19 spread. With everybody (over 16) willing to get vaccinated able to get shots, the numbers are going down a bit and it’s becoming time to think about catching back up with Al and my medical care. I’m…

This isn’t normal: why we often ignore early symptoms of our condition(s)
Strategizing for success | Taking care of yourself

This isn’t normal: why we often ignore early symptoms of our condition(s)

In late March, I went out for a walk on the nature trail by my house. As I crossed one of the several bridges along the route, I noticed something unusual—a flash of silver as a fish (specifically, a bunker) surfaced, gasping, and then rolled back over into the water. This is not normal fish…

Functional Neurological Disorder treatment programs are worth the effort!
Strategizing for success | Taking care of yourself

Functional Neurological Disorder treatment programs are worth the effort!

I participated in the MoRe—Motor Reprogramming—program in Louisville, Kentucky, in 2016. It was the single most helpful treatment I have ever had, and may ever have, for my Functional Neurological Disorder(FND). In this post, I want to go over why this is a treatment option, how it works, and how you can find a similar…

The Seven Steps of Accepting Your Diagnosis
Increasing your independence | Strategizing for success

The Seven Steps of Accepting Your Diagnosis

As I have mentioned in previous posts, accepting your diagnosis isn’t as easy as it may first sound. For most people, there’s a fair amount of time between when symptoms first occur and when they know what is actually happening inside their bodies. There also is definitely a sense of loss involved in really recognizing…

Ableism in society: everybody wants you to be okay
Social connections | Strategizing for success

Ableism in society: everybody wants you to be okay

One of those challenges that many of us need to deal with is that on top of the physical and emotional trauma involved in our illnesses or injuries, we also often need to communicate what is happening to our loved ones and other significant people in our lives.  This can be challenging, as we are…

Accepting my Functional Neurological Disorder diagnosis
Strategizing for success | Taking care of yourself

Accepting my Functional Neurological Disorder diagnosis

April is FND Awareness Month, and April 13 is FND Awareness Day. I’m going all in on that, and I’ll be focusing this post and month on the process of accepting your diagnosis—and illustrating it with my FND experiences (and what I’ve picked up from fellow FNDers inside of discussion groups). I’m also using A…

Caregiving: Do I need to hire a caregiver?
Strategizing for success | Taking care of yourself

Caregiving: Do I need to hire a caregiver?

While the term caregiver is bandied about a lot in the disabled community, it’s important to distinguish between paid and unpaid caregiving. Many of us have been caregivers in a less official capacity at various points in our lives—caring for children, parents, siblings, or friends during temporary or long-term health problems. Most of us have…

Three years of growing Thriving While Disabled!
Increasing your independence | Strategizing for success

Three years of growing Thriving While Disabled!

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are incorporating, breathing, smiling, stopping, and relishing. This month is the three-year anniversary of creating this blog! I can’t really believe that it’s been three years. I’m really proud of the fact that I’ve published a new post every single Friday since…

The pain of losing a great doctor
Dealing with Doctors | Overcoming Obstacles

The pain of losing a great doctor

On Tuesday, I had an appointment with a new neurologist. The neurologist I’d been seeing, Dr. Schneider, was on medical leave due to a cancer diagnosis. I’d had a telehealth appointment with Dr. Schneider in June, and he’d been a little pale and skinnier than usual (he was always a pretty slender guy), and during…

Improving your public transportation experience
Increasing your independence | Strategizing for success

Improving your public transportation experience

I know that using public transit can feel overwhelming, but it can also become empowering to take it—it’s a way to regain at least some longer-distance mobility and allow you to go out on your own to work, play, or get medical care. Understand your transit system’s patterns Once you know where you want to…