When you are newly disabled or just starting to realize that you have a condition that will have long term effects on you, it’s important for you to understand what you have, how it works, and what your loved ones may be able to do to help manage your situation. This isn’t necessarily easy, as…
Once more, I am participating in A Chronic Voice’s monthly linkup. words: budget, escaping, speeding, slowing, evaluating This month’s prompts had me thinking about energy. Emotional energy, physical energy, mental energy – all of these energies are limited. So many of our personal day-to-day decisions are heavily influenced by how much energy we have, how…
I know, you hear massage and think of it as a luxury. Massage therapists? A pampering that the rich people get, not us. Sometimes, though, massages are the best possible treatment! Massage can also be incredible medicine for a variety of conditions, including Functional Neurological Disorder(FND), the condition I have. Why get a massage? Most…
Doctor shopping is the process of seeking multiple doctors in the same specialty. If you fear misdiagnosis, doctor shopping may be a powerful tool for you.
I just learned that this week is low B12 awareness week, so I wanted to talk to you a bit about low B12, what it is, what it does, and what you may be able to do to manage it! I do have personal experience with this, as it looks likely that my partner Al’s…
I am trying something a little different today. A Chronic Voice has a monthly linkup to connect people with chronic illnesses. Each month, there is a different set of prompts(5 words) that they encourage you to write about. This is my first time participating. If you are also interested, please follow the link above! Reconnecting I…
Losing some friends due to chronic illness is practically inevitable and nearly impossible to prevent entirely. However, there are definitely things that you can do to help yourself maintain many of your friendships, and become closer to the friends you are able to keep. The first step is to face reality and recognize why you…
There is a lot of information out there about what you can’t do – working after you have applied for disability is risky. Furthering your education is also a dicey proposition. During those months to years of waiting for a decision to be reached, what can you do? What should you do? Do you really…
So, getting a good night’s sleep is vital for our lives and health. Most disabling conditions cause or exacerbate sleep issues. It’s a frustrating situation, and one that requires some consideration – and some planning to resolve! Today, let’s talk about what good sleep hygiene is(and isn’t), and what you can(and can’t) realistically do to…
So you are going to college! College is an exciting experience for anybody, but when you are managing a disabling condition, it’s vital that you consider your school’s willingness to provide accommodations to you based upon your disability. Accommodations research to help you decide where to go If you are going to need accommodations in…