Traveling with a disability: Using the bus
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Traveling with a disability: Using the bus

When you are managing a disabling condition, taking the bus may be your primary option for independent travel.  I feel very lucky, living in New Jersey, that I have a relatively large variety of options for traveling, but I understand that in the South and areas of the Midwest especially, trains are few and far…

Let me tell you about Hours Well Spent!
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Let me tell you about Hours Well Spent!

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are uniting, defining, allocating, educating, saving. I have wanted to create this project for years, and now it’s looking like I may have found the right folks to help me make it a reality. I’m super-excited about it and want to explain…

Food can be medicine too: the power and danger of special diets
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Food can be medicine too: the power and danger of special diets

One of the things you’ll find if you start researching medical conditions is that there are often dietary suggestions made—things to add (or remove) from your diet, suggestions for what you should (or shouldn’t) eat, and suggestions for when and how to eat. It can easily become overwhelming, and it can also put your health…

Participating in discussion groups about your condition
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Participating in discussion groups about your condition

One of the groups that I’ve been active in over the years has been FND Hope‘s collection of Facebook groups on Functional Neurological Disorder (FND), the condition I was diagnosed with in 2003. There are both risks and benefits to participating in these groups, but generally, I’d argue that they’re worthwhile, especially early on and…

Self-diagnosis: perils, pitfalls, and occasionally the appropriate action
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Self-diagnosis: perils, pitfalls, and occasionally the appropriate action

While I’ve talked about how the diagnosis process is one of guessing and checking, I want to emphasis that in most cases, it’s essential to have a doctor be involved in the process. We, as lay people, don’t have access to all the information or tools needed to be in any way sure that our…

Five ways that recording your health history can improve your life
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Five ways that recording your health history can improve your life

I have been living with chronic conditions, both physical and mental, since I was a kid. I’ve been encouraged to write about it, talk about it, think about it, and then put it all aside and move forward with my life. There’s good reasons for doing these things. Today, I want to talk to you…

Lessons learned from 2020
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Lessons learned from 2020

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are beginning, symbolizing, enduring, revealing, gracing. As it is January, I’m going to write about the concepts these words bring up for me and what lessons I’ve learned from 2020. Beginning the new year with new medication coverage The headache started in…

How low expectations get me through the holidays
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How low expectations get me through the holidays

I don’t know about you, but I tend to feel a bit depressed around the holidays. I definitely know that a big part of it is how strongly I associate this time of year with my father’s death. I’ve got a long history with depression and have learned that I tend to mentally string together…

The many challenges Covid-19 has added to the holiday season
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The many challenges Covid-19 has added to the holiday season

While many countries have gotten Covid-19 under control by now, the US has dramatically failed that challenge. We are among the worst countries in the world in terms of both infections and fatalities from this disease. One of the biggest spikes this year was associated with Thanksgiving, which is usually the biggest travel weekend of…

Recognizing my progress, despite the challenges this year has brought
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Recognizing my progress, despite the challenges this year has brought

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are exhausting, exciting, socializing, indulging, and cutting. Like most people, Covid-19 had a large impact on my life, and not always in expected ways. Join me in processing just what changed this year and the lessons I’ve learned from that. Fear is…