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With the Black Lives Matter protests and events are occurring as part of a call for justice, I want to do my part to help the movement.

While police brutality is what triggered this movement, there are a lot of complex roots underlying it. This post focuses on the disabled angle.

As a disabled person, I am very aware of ableism and the injustices that the disabled community as a whole face.

This post is predominantly directed at non-Black disabled folks to help us better understand the situation. If you are a Black, disabled person, I’d appreciate any feedback you can provide on the resources and tone in this post. I’m doing my best to be a supportive ally, but completely recognize that I won’t always get things right.

Black disabled people are an intersectional identity that is extremely marginalized and deserves focus and attention. So let’s explore some of the issues around that intersection of disabled and Black identities.

left side holds a picture of Alison gazing levelly at the camera.  To the right, white text reads "Medical care decisions feel overwhelming?" and in smaller brown text "Click here to learn about my medical care coaching".  The far right of the banner holds the Thriving While Disabled logo

Black people become disabled at a higher rate than most other races in the US

The first thing to understand is that Black people in the US are disproportionately disabled.

One in four Black people are disabled, but the number of white(1:5), Asian(1:10) and Hispanic(1:6) disabled people is lower.

The only racial group with a higher frequency are Native people(3:10), who are another group that is severely marginalized.

The CDC doesn’t explain why, but I would estimate that systemic racism is, in large part, to blame.

Those of us disabled folks who aren’t Black(or Indigenous) need to respect that Black(and Indigenous) people join our community at a higher rate than most.

Life with a disability isn’t easy, so as the largest minority, we should be supporting all members of our community.

Police Brutality towards disabled people

These protests started after George Floyd’s murder by police. While he was not disabled, many of the people killed by police are black and disabled.

Given the current protests, the first challenge I want to acknowledge is issues with law enforcement.

The US police force participates in racism and ableism, leading to disturbing information, like the disproportionate murder of disabled people in general by the police, with an estimated half to one-third of people killed by police having some form of disability.

Intersectional identities, like Black disabled people, are the most impacted by police brutality.

Unfortunately, there is not much reliable effort put into recording these intersectional identities(police records rarely record whether or not an individual is disabled), making it possible that the numbers are actually higher.

I support the protests against the deaths of so many Black people in the hands of police.

I want to make sure that police brutality towards disabled people is also recognized as so very many Black disabled people have died at the hands of police – and much of the training (such as bias training) that would benefit Black people could also benefit most minority identities.

I see the work of the Black Lives Matter movement as one that can and should help all Black people, and ideally intersectional identities that also are fighting injustices in treatment.

I recently was introduced to the Police Brutality Center, which has some excellent resources both for victims of police brutality and informational resources to help people protect themselves from becoming victims of police brutality.

left side holds a picture of Alison gazing levelly at the camera.  To the right, white text reads "Medical care decisions feel overwhelming?" and in smaller brown text "Click here to learn about my medical care coaching".  The far right of the banner holds the Thriving While Disabled logo

Removal of disability from our history

Those of us managing disabilities benefit from knowing that others with disabilities have succeeded, to give us hope for the future.

We need to make sure that we don’t get written out of history. Image courtesy of Disabled And Here(https://affecttheverb.com/disabledandhere/)

Unfortunately, in many cases, the disabled aspect of many people’s identities are removed from their histories, so it’s harder for us to understand our place in society.

Part of the challenge is that in many cases, disabled people have “passed” as abled in order to succeed, or the people who wrote their stories chose to minimize or remove their disabled identity.

In other cases where that was impossible, like Helen Keller, their significance in history may be minimized or poorly represented.

I know that my personal education in terms of Helen Keller was focused on inspiration porn stories of her early challenges in connecting with the world, rather than her later work towards women’s rights, her support of socialism, and other relatively unique contributions she made to society.

Knowing how bad it is for whites, let’s pause a moment to recognize that this same issue occurs for Black people as well. Given the huge gaps in recorded Black history due to slavery and racism, it’s a lack that may be deeper felt and is certainly more obvious.

left side holds a picture of Alison gazing levelly at the camera.  To the right, white text reads "Medical care decisions feel overwhelming?" and in smaller brown text "Click here to learn about my medical care coaching".  The far right of the banner holds the Thriving While Disabled logo

Racism in society makes success harder for Blacks

Disturbingly, while most racial groups experience increased health as income increases the same cannot be said for Blacks.

Research has also indicated that while reaching higher levels of social and financial success relieves pressure on non-Hispanic whites, Blacks remain in a similar level of stress even if they have increased income or other signs of social success.

Those of us with disabilities have likely experienced ableism in one form or another – use that experience to empathize with folx experiencing racism and all the other ‘isms’ out there!

As mentioned above, Black people become disabled at a higher rate than whites(more on that in the next section), and minorities have much higher rates of stress-associated health conditions.

There are now studies suggesting mechanisms for this process. However, what it boils down to is that being Black is stressful, even when comparing people with similar life histories and socioeconomic backgrounds.

The Center for American Progress lays out a relatively concise and readable history of systemic racism in employment in the US.

The short version is that while slaves were freed, Blacks have historically been pushed towards lower-wage professions, had limited ranges of opportunities, and these “historically Black” jobs have not been protected the same way “historically white” jobs were.

Most opportunities to help people in need focused on white people and most organizations designed to support Black rights or systemic equality were underfunded.

Social welfare programs stagnated once Black people became eligible for them.

Today, these issues persist, with Black people being paid less than whites who are doing the same job, and Black boys can expect to earn less than their white classmates in similar socioeconomic situations.

Black Lives Matter.

Is it any wonder that people are protesting in the streets?

For white people stating that they aren’t racist, we are participating in a social system that is designed to give whites the benefit of the doubt, and disproportionately penalizes minorities in all matters.

The system is rigged, even if individuals aren’t actively trying to hurt Black and brown people.

left side holds a picture of Alison gazing levelly at the camera.  To the right, white text reads "Medical care decisions feel overwhelming?" and in smaller brown text "Click here to learn about my medical care coaching".  The far right of the banner holds the Thriving While Disabled logo

Recognizing bias – in ourselves and in others

Everybody has biases, and due to participating in a racist social system with biased information sources, all of us are socialized toward a racist mindset.

And, in all honesty, we’re also all socialized toward an ableist mindset as well.

These systemic biases run deep and we’re not necessarily conscious of them. That’s what makes things like Harvard’s Implicit Bias tests so important.

As an identity that is also marginalized, we need to support Black Lives Matter.

I like to think of myself as a bit of an activist and as deeply embracing social equality.

I hate that systemic racism exists, and I have friends of many races.

However, I remain slightly biased against blacks, and somewhat biased against disabled people.

I still have work to do.

The first step to solving any problem is recognizing that there is one.

I hope that this post has helped awaken you to the fact of systemic racism(or reignited your fire about it), so that you can take steps to help fight it.

Test yourself – there are many options in that test and many can help you better recognize your biases and better understand your own tendencies.

Having bias is simply a reality – everybody has some preferences, beliefs, or ideas that come from their life experiences.

The problem isn’t the existence of bias, the problem is that so many people don’t acknowledge their bias and believe they are making a fair or reasonable decision despite the fact that their decision is affected by their bias.

By knowing your own tendencies, you can question yourself and do your best to manage or account for your own personal bias.

Again, if you don’t know you have a problem, there’s nothing you can or will do to fix it.

left side holds a picture of Alison gazing levelly at the camera.  To the right, white text reads "Medical care decisions feel overwhelming?" and in smaller brown text "Click here to learn about my medical care coaching".  The far right of the banner holds the Thriving While Disabled logo

So what can white folks do?

What can you do now?

If you aren’t part of the solution, you’re part of the problem.

Well, if you aren’t Black and disabled, work on understanding the experiences of Black disabled people.

Do some googling, take the bias test, and search the hashtag #blackdisabledlivesmatter on social media.

You can find more information at multiple sites, including Racial Equity tools, National Disability Rights Network, Triple Cripples, and Black, Disabled, and Proud

When you see your fellow disabled folks who don’t share your racial identity(or sexual orientation, etc), take a moment to say hi and get to know them a bit. Try to break down whatever biases you have by getting to know others with those identities.

All of us with disabilities deserve to live better lives – and focusing on helping multiply marginalized members of society rise up will help all of us take a big step toward social equality.

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10 Comments

    1. Thanks so much! This is a really important issue – and it’s so very important that we recognize and focus on our similarities and fight to expand the rights of our communities. I want everybody to get a fair chance and I’m very tired of knowing that I’m benefitting from a rigged system. I want us to actually carry out the ideals in the constitution of ALL men(people) being equal. And focusing on black lives, especially black disabled lives, is a way to help tip those scales in the right direction!

  1. It’s madness to that Black people go through racism and then if you’re disabled too it makes the challenges far worse. Thank you for highlighting this.

    Today, I was sent this video – on how black people are looked at – how the gaze has so much prejudice. That needs to change to… it’s such a simple thing and is so hurtful.

    https://www.youtube.com/watch?v=aJav36Nbn58

    1. Shruti,
      The video is great! Racism is a deep issue here and one that is impossible to completely escape(well, maybe be unaware of if you are a white person with no connections whatsoever to non-white people).
      I’m hoping to help folks better understand the issues so that we can all be better allies

  2. You have really brought out issues that many don’t consider, black disabled lives matter, too. There is so much that needs to change in our society. I think this time of COVID-19 has given us the time and quiet to stare it hard in the face and realize what our nation has allowed. Keep up your work. You are making a difference for the marginalized groups of LGBTQ, Black Lives, Black Disabled Lives, and Disabled/Chronic Illness.

    1. Katie – thank you! I hope my writings do help and make a difference! I want our community to be more aware, and to do what we can as we can to help improve the way that we and other minorities are treated!

  3. I have to know, why is it “black” disabled lives matter? When people with disabilities face the same issues. We are treated like vermin, and I’d like to see equality for every disabled person who faces discrimination. It doesn’t send the right message. I’m not going to save someone from the fire based on their skin color, and let others burn. When people were encouraged to help asylum seekers, they scoffed at the homeless.

    Disability is entirely an issue in itself. And I’m not going to pick and choose, because I’ve so many suffering regardless of their skin color.

    1. Jane,
      I’m sorry you took offense at my post and I recommend rereading it. Like everything involved in the Black Lives Matter movement, there is an implied ‘too’ to the statement. My post is titled ‘black disabled lives matter’ because black disabled lives matter too. I am a white disabled person, which means that while I absolutely do have struggles, my skin color isn’t one of them. My entire website and my coaching services are all based upon the premise that disabled folks have needs and rights and deserve a better quality of life than we currently experience – and my posts and coaching are all about helping my fellow disabled folks to get the supports they deserve and the help they need, regardless of their identity.
      I felt it was important, though, to point out the extra struggles that come with having an intersectional minority identity – such as this post which discusses some of the extra challenges that black disabled folks face. I have another post that discusses some of the specific issues that disabled members of the LGBTQ community face. I’m doing these posts to highlight awareness – to let the folks who share that intersectional identity know I’m aware of their struggles and let them(or us) feel heard – and to educate folks who don’t share that particular intersectional identity on some of the challenges they(or we) face.
      Ableism and racism are both baked into our society and there’s a lot of work that needs to go into unlearning those biases. Becoming aware that we have them is the first step in the struggle. You can’t solve a problem until you know it exists.
      Jane, I hope this helps you understand why I wrote a post(and shared a few guest posts) that specifically talk about the struggles of black disabled people- because they are a part of this diverse identity, and have too frequently been left out of the conversation.

      keep thriving,
      Alison

      1. If disabled lives mattered in the first place, then the “too” would be relevant. :S Basically saying” don’t forget about us too!” In addition to those that matter. But we don’t matter. Courts often drop cases when it’s police vs disabled person/victims.

  4. I’m currently suffering from one of my episodes. Not offended, just frustrated.
    I just don’t see the “too” because from where I stand, disabled lives don’t actually matter. There’s a lot of hate speech, attacks and discrimination. But I’m also from Canada, where it might be different. A lot of disabled people here started killing themselves during the pandemic because the government gave out money to everyone else. Blah- episode.

    Skin color just won’t likely save a disabled person from a police attack.

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