Building a partnership with your doctor: good doctor-patient communication
Dealing with Doctors | Strategizing for success

Building a partnership with your doctor: good doctor-patient communication

Doctor and patient communication should be a two-way street, not one. While your doctor has medical expertise and training in how to recognize and treat medical conditions, you are the expert on your body and your needs. As a patient, it’s your responsibility to gather good information about yourself and your history and symptoms, and…

Building a partnership with your doctor(s): Deciding when you need to see your doctor
Dealing with Doctors | Strategizing for success

Building a partnership with your doctor(s): Deciding when you need to see your doctor

This is the first of three posts on creating a partnership with your doctor(or doctors). This post focuses on how often to see your doctor. The second post will be about how to communicate better with your doctor, while the third post digs into recognizing your doctor’s ability(or inability) to work with you. I always…

Al’s diagnosis journey: how a broken hip led to diagnosis of a blood disorder
Dealing with Doctors | Overcoming Obstacles

Al’s diagnosis journey: how a broken hip led to diagnosis of a blood disorder

This post is about why it’s so important to keep pushing doctors in order to find out just what the medical problem is, and how to solve it. The following is what Al and I went through(mainly from a medical perspective), and the lessons we learned from it. Despite mostly finding very good doctors, going…

Getting diagnosed with Functional Neurological Disorder
Dealing with Doctors

Getting diagnosed with Functional Neurological Disorder

I have a condition known as Functional Neurological Disorder(FND).  I was diagnosed in 2003, when people were even less aware of the condition than they are now.  It had a different name(Conversion Disorder) and was labeled as a form of mental illness, rather than as a neurological condition.   In my case, Conversion Disorder remains…

Getting a second opinion: how, when, and why to do it!
Dealing with Doctors | Overcoming Obstacles

Getting a second opinion: how, when, and why to do it!

If your condition is complicated, you will likely need to see a variety of experts.  Somewhere on that journey, a doctor, most often a specialist of some sort, will recognize your symptoms and give you a diagnosis.  Is that diagnosis enough?  Are you set now?  Or do you need to go deeper down the rabbit…

Extra risks from cold treatment when living with a chronic or disabling condition
Dealing with Doctors

Extra risks from cold treatment when living with a chronic or disabling condition

Yes, I’m still sick, and it looks likely that my bronchitis has shifted into reactive airway disease.  I did want to write about another aspect of being sick while managing a chronic condition(and the medications that go with it) – namely drug interactions with over the counter medications, unexpected side effects or complications,  and the…

Could your medication be part of the problem?
Dealing with Doctors

Could your medication be part of the problem?

With many conditions, medication is often part of the treatment process.  There are risks and rewards to medications, but at times those risks feel huge, and the rewards feel distant and difficult to reach.  So many medications are now being advertised on TV with a message of hope, followed by a seemingly unending list of…