Understanding medical diagnosis: why it’s all ‘best guesses’
|

Understanding medical diagnosis: why it’s all ‘best guesses’

I thought it might be helpful to take a few steps back and dig into how doctors are trained to think about and look at patients, and how they are trained to make diagnoses. This is really important because it helps us understand where missteps and mistakes are more likely to happen and to have…

Being your own boss on disability: mastering your destiny
|

Being your own boss on disability: mastering your destiny

As I’ve mentioned on previous posts, you can work while on SSI or SSDI. There are programs, like Ticket to Work and Vocational Rehab programs that can help with the process. However, the reality is that while they can give you information about working, they often are only prepared to help you with calculations related…

Internalized Ableism: the struggle to accept our own worthiness
|

Internalized Ableism: the struggle to accept our own worthiness

People with disabilities are often marginalized by society – and there are a variety of reasons for it. The social model of disability focuses on how instead of viewing our symptoms as failures on our part, it’s time to start looking at what assumptions society has made that makes participating in the greater community more…

Navigating the Charity Care Labyrinth
|

Navigating the Charity Care Labyrinth

As of July 27, 2020, I am elated to announce that I am no longer in debt to my local hospitals. I’m also very angry that it’s taken as long as it has. To give you some background: I have Functional Neurological Disorder(FND), which is a relatively common (but rarely properly diagnosed) neurological condition that…

How to take care of yourself while applying for government support
|

How to take care of yourself while applying for government support

I’ve written about why shame is often attached to utilizing social welfare programs. This post digs more deeply into truths we can recognize and mindsets we can embrace to help protect ourselves from that shame while we use these programs designed to help us. We all use Social welfare programs It’s interesting that we often…

Stress-related health conditions
|

Stress-related health conditions

There are many conditions that are directly associated with stress. While that includes most, if not all, mental illnesses, it also includes very physical conditions such as diabetes, many forms of coronary disease, and asthma, to name a few. Functional Neurological Disorder(FND) is also considered a stress-related condition. Today, let’s talk about how stress works,…

Managing my disrupted life
|

Managing my disrupted life

So, it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are bothering, demanding, nourishing, telecommunicating, and tolerating. This month, it flowed out as the stresses I’m acknowledging in my life and how I’m muddling through. The negative ramifications of the word ‘bothering’ The word bothering, well, bothers me. The Miriam-webster definition…