When social welfare programs fail to work
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When social welfare programs fail to work

It’s that time again, I’m writing in response to A Chronic Voice’s monthly linkup.  March prompts: weighing, targeting, being, doing, staying This month, I was inspired by the struggles my partner Al and I have been having the past few months with three different programs designed to help our most needy populations: Medicaid, LiHEAP(Low-income Heat and…

Getting diagnosed is a journey, not an event
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Getting diagnosed is a journey, not an event

Doctors can and often do make the wrong diagnosis. There are also people, especially those who spend a long period of time without a diagnosis, who start to see a diagnosis as a holy grail – that one true thing that will make their lives ok again. What a diagnosis is Diagnoses are labels. They…

Managing Stress if you go to an ER
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Managing Stress if you go to an ER

If you are not experiencing an immediately life-threatening emergency, please double-check with your doctor if at all possible to see if there is a reasonable alternative to going to the ER. Not only are ER visits substantially more expensive than regular doctor or hospital visits, but they also are spaces where you have almost no…

Traumatic Brain Injuries and Emergency Rooms
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Traumatic Brain Injuries and Emergency Rooms

I want to specifically talk about brain injuries in relation to emergency rooms because I have had too many experiences with them. I know how challenging it can be to have a TBI recognized and how very important this is, especially in the case of the brain injury being caused by an accident that eventually…

Should I go to the emergency room: the trauma factor
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Should I go to the emergency room: the trauma factor

My phone rang. ‘Hey, honey?’ my partner Al said “I need you to call mom and dad about this, but I want you to make sure they don’t freak out” “Freak out about what?” I asked, instantly concerned. “Well, they called an ambulance for me. I slipped and I think I might have dislocated my…

Selecting your Medicare drug coverage online
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Selecting your Medicare drug coverage online

This post takes you through when I used Medicare.gov to select my Medicare part D(medication) plan for 2020. I decided that it might be useful for any of you who also need to make this selection to walk you through the website and the decision-making process I went through in selecting which plan made the…

Heat and energy assistance from the government: LIHEAP
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Heat and energy assistance from the government: LIHEAP

Al and I are in the process now of getting our Low-Income Heat and Energy Assistance Plan(LIHEAP) renewed. Since we are getting it done right now, I figured it was a good time to talk about this program. What is LIHEAP? LIHEAP exists in some form in every state but is usually managed on the…

Making sure that you get the government support you need!
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Making sure that you get the government support you need!

I’ve written a lot about the government programs that could help you survive while managing your disability, and about how very broken the entire system is. Today, I want to dig into an additional issue that is also a side effect of the broken system: simply being left in limbo for prolonged periods with no…