Thanksgiving and TBI – I miss you dad

Thanksgiving and TBI – I miss you dad

It’s Thanksgiving week.  This is now my 15th Thanksgiving without my father.  Fifteen years ago, the Saturday before Thanksgiving, my life was irrevocably changed by my father’s traumatic brain injury(TBI).   What happened He slipped.  While climbing a ladder.  He fell less than 10 feet, but just landed on the back of his head.  The…

Extra risks from cold treatment when living with a chronic or disabling condition

Extra risks from cold treatment when living with a chronic or disabling condition

Yes, I’m still sick, and it looks likely that my bronchitis has shifted into reactive airway disease.  I did want to write about another aspect of being sick while managing a chronic condition(and the medications that go with it) – namely drug interactions with over the counter medications, unexpected side effects or complications,  and the…

FND and medical support
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FND and medical support

Once more, I am participating in A Chronic Voice’s monthly linkup.  For reasons that will become apparent as you read, this is also my post this week! Prompts: Meeting, Advocating, Tweaking, Working, Curating These prompts together make me think of the fight so many of us with disabling conditions and chronic illnesses have to consistently participate in to properly…

Could your medication be part of the problem?

Could your medication be part of the problem?

With many conditions, medication is often part of the treatment process.  There are risks and rewards to medications, but at times those risks feel huge, and the rewards feel distant and difficult to reach.  So many medications are now being advertised on TV with a message of hope, followed by a seemingly unending list of…

Waiting for disability: what to do with yourself between application and decision
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Waiting for disability: what to do with yourself between application and decision

There is a lot of information out there about what you can’t do – working after you have applied for disability is risky.  Furthering your education is also a dicey proposition.  During those months to years of waiting for a decision to be reached, what can you do?  What should you do?  Do you really…

Going to college with a disability: academic accommodations
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Going to college with a disability: academic accommodations

So you are going to college!  College is an exciting experience for anybody, but when you are managing a disabling condition, it’s vital that you consider your school’s willingness to provide accommodations to you based upon your disability. Accommodations research to help you decide where to go If you are going to need accommodations in…

Can I go to school while on disability?
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Can I go to school while on disability?

The question of attending school is an important one, as education is an important aspect of personal development.   Students with disabilities who are under 21 Children are always expected to receive schooling, including children with disabilities.  Most children with disabilities have an Individualized Education Plan(IEP), which spells out parent and teacher expectations for the…

Can you travel while on disability?
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Can you travel while on disability?

Traveling on disability is simultaneously an attractive idea and a serious challenge.  The idea of not needing to live in one place and developing a nomadic lifestyle feels appealing to me, and I am sure to many others as well.   Once you’ve gotten over the initial shock of your condition, and once you have…