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  • Taking care of yourself

    A Chronic Voice September 2018 linkup

    ByAlison Hayes September 19, 2018May 30, 2019

    I am trying something a little different today.  A Chronic Voice has a monthly linkup to connect people with chronic illnesses.  Each month, there is a different set of prompts(5 words) that they encourage you to write about.  This is my first time participating.  If you are also interested, please follow the link above! Reconnecting I…

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  • woman in hat sits by fence, waiting
    Social connections

    losing friends due to chronic illness: what you can do to keep the right ones!

    ByAlison Hayes September 14, 2018May 30, 2019

    Losing some friends due to chronic illness is practically inevitable and nearly impossible to prevent entirely.  However, there are definitely things that you can do to help yourself maintain many of your friendships, and become closer to the friends you are able to keep.  The first step is to face reality and recognize why you…

    Read More losing friends due to chronic illness: what you can do to keep the right ones!Continue

  • man near glass window pane
    Taking care of yourself | Getting Government assistance

    Waiting for disability: what to do with yourself between application and decision

    ByAlison Hayes September 7, 2018December 21, 2021

    There is a lot of information out there about what you can’t do – working after you have applied for disability is risky.  Furthering your education is also a dicey proposition.  During those months to years of waiting for a decision to be reached, what can you do?  What should you do?  Do you really…

    Read More Waiting for disability: what to do with yourself between application and decisionContinue

  • good sleep hygiene for insomnia
    Strategizing for success | Taking care of yourself

    Sleep hygiene for insomnia: Getting a better night’s sleep

    ByAlison Hayes August 31, 2018November 26, 2022

    So, getting a good night’s sleep is vital for our lives and health.  Most disabling conditions cause or exacerbate sleep issues.  It’s a frustrating situation, and one that requires some consideration – and some planning to resolve!  Today, let’s talk about what good sleep hygiene is(and isn’t), and what you can(and can’t) realistically do to…

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  • woman smiling and shrugging in graduation cap
    Getting Government assistance | Overcoming Obstacles | Strategizing for success

    Going to college with a disability: academic accommodations

    ByAlison Hayes August 24, 2018May 30, 2019

    So you are going to college!  College is an exciting experience for anybody, but when you are managing a disabling condition, it’s vital that you consider your school’s willingness to provide accommodations to you based upon your disability. Accommodations research to help you decide where to go If you are going to need accommodations in…

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  • mindful self-compassion
    Strategizing for success | Taking care of yourself

    Mindful self-compassion

    ByAlison Hayes August 3, 2018April 3, 2021

    Most people have regrets over choices made(or not made), and many people wish their lives were in some way different.  Mindful self-compassion is the practice of being self-aware in the moment and practicing kindness and empathy to yourself while you are there. What is mindfulness? Mindfulness is the ability to live in the moment –…

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  • disability and sleep disorder
    Overcoming Obstacles | Strategizing for success | Taking care of yourself

    Disability and Sleep disorders: why we need a good night’s rest

    ByAlison Hayes July 20, 2018March 14, 2023

    Nearly 20% of the global population has a sleep disorder.  Sleep disorders can be debilitating, and sleep disorders make other conditions worse.  With our daily patterns and routines disrupted, the only thing that would be surprising would be if our sleep cycles weren’t affected by our disabilities! Why is sleep so important? When you are asleep, your…

    Read More Disability and Sleep disorders: why we need a good night’s restContinue

  • A black and white photo, featuring a plain building with windows at consistent repeated intervals. In the forefront on the left-hand side, a shoulder and hand are visible, with the hand pressed against the windowpane that the picture is taken through.
    Social connections | Strategizing for success

    Disability and loneliness: The power of maintaining social connections

    ByAlison Hayes July 13, 2018December 12, 2022

    One of the big differences between ’being sick’ and dealing with a chronic condition is how your relationships and activities are affected.  If you’re sick, staying home and resting up IS a great idea.  Sure, you may miss one or two activities you were looking forward to, but you’ll feel better and get back into…

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  • planner for developing structure in life
    Strategizing for success | Taking care of yourself

    I need structure in my life, and you do too!

    ByAlison Hayes June 22, 2018May 30, 2019

     Most people spend much of their lives living within societal structure.  By this, I mean that most people went to school as children, had scheduled work hours as an adult, and otherwise had discrete blocks of time set aside for specific activities.  One of the social problems with a disabling condition is that those of…

    Read More I need structure in my life, and you do too!Continue

  • How healthy is your mind? a girl with the left half of her face made up to appear like a skull
    Strategizing for success | Taking care of yourself

    How healthy is your mind?

    ByAlison Hayes May 25, 2018May 27, 2022

    When you are injured or ill, there is a lot of focus on healing your body, but your mind’s health(mental health) is a huge factor in your recovery process. Since this is mental health awareness month I wanted to talk about the relationship between physical and mental health. The question I have for you is…

    Read More How healthy is your mind?Continue

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Meet The Author

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Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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