I have been living with Functional Neurological Disorder for the past 20 years. I also realized that I was bisexual about 19 years ago. After I joined BiRequest several years after coming out, I was invited to participate in the Heritage of Pride March in New York City. I loved the experience of marching through…
As I’ve mentioned in previous posts, I’m an active participant in the New Jersey Poor People’s Campaign. I want to share with you the most recent activity of the campaign and explain both its significance and how it helps us, the disabled community. The Poor People’s Campaign along with House Representatives Barbara Lee and Pramila…
One of those challenges that many of us need to deal with is that on top of the physical and emotional trauma involved in our illnesses or injuries, we also often need to communicate what is happening to our loved ones and other significant people in our lives. This can be challenging, as we are…
This post is by a friend of mine, Michele Harold, who holds the subject of disclosure near and dear to her heart. “You’re always sick,” my coworker said to me as I entered the office. I had called in sick the day before due to my disability. My disability causes chronic pain, fatigue, and low-grade…
So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are uniting, defining, allocating, educating, saving. I have wanted to create this project for years, and now it’s looking like I may have found the right folks to help me make it a reality. I’m super-excited about it and want to explain…
While many countries have gotten Covid-19 under control by now, the US has dramatically failed that challenge. We are among the worst countries in the world in terms of both infections and fatalities from this disease. One of the biggest spikes this year was associated with Thanksgiving, which is usually the biggest travel weekend of…
So, it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are producing, acquiring, switching, disappointing, and forming. Here in the US, it’s election season, and it’s a strange one thanks in part to Covid-19. It has been a really strange and stressful year, and I am extremely concerned about the outcome of…
I have participated in every election since I’ve legally been able to. I feel really fortunate to be able to say that. I’m deeply aware of the privilege behind that, not only due to my whiteness, but also because I’ve lived in areas with minimal waits, and my disability doesn’t require any special accommodations in…
The first thing that I want to make very clear is that I *want* the public to do a better job of making things accessible. I know that even getting ramps, captions, image descriptions, and other basic essentials meant to allow people with physical disabilities to participate in society still has a long way to…
I shed many tears to unpack these memories of my wounds that are clearly still open just to write this blog. The subject of ableism is relevant to all aspects of life yet there is very little discussion. The subject is basically unchallenged by society. While many people are recognizing and studying racism, much less…