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  • protest sign leaning against a door. It reads "Racism is a pandemic'
    Social connections | Strategizing for success

    Covid-19 is a fulcrum: let’s change the world!

    ByAlison Hayes August 7, 2020August 6, 2020

    So, it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are unlocking, limiting, studying, healing, and watching. This month, it felt really appropriate to focus in on our ability, as disabled folks, to help embody the changes that could help our country heal. Covid-19 has served to highlight the inequalities and…

    Read More Covid-19 is a fulcrum: let’s change the world!Continue

  • Red fist with infinaty symbol. Tovthe right black text "Black Disabled Lives
    Social connections | Overcoming Obstacles

    Black Disabled Lives Matter

    ByAlison Hayes June 19, 2020February 10, 2023

    With the Black Lives Matter protests and events are occurring as part of a call for justice, I want to do my part to help the movement. While police brutality is what triggered this movement, there are a lot of complex roots underlying it. This post focuses on the disabled angle. As a disabled person,…

    Read More Black Disabled Lives MatterContinue

  • Don’t hide behind your disability
    Social connections | Strategizing for success

    Don’t hide behind your disability

    ByAlison Hayes June 12, 2020June 11, 2020

    This post doesn’t apply to everybody, but I think most of us likely know a person or two who could use this advice. What I’m talking about is mostly applicible to people stuck in a victim mentality, but it is something that any of us with disabilities need to step back and reflect on every…

    Read More Don’t hide behind your disabilityContinue

  • The LGBT community needs to support all its members
    Overcoming Obstacles | Social connections

    The LGBT community needs to support all its members

    ByAlison Hayes June 5, 2020June 1, 2022

    This is Pride month, and while I want to celebrate, I feel it is more important to discuss injustice and oppression. With the protests(and occasional rioting) that is going on all over the US, I feel it’s important to discuss the intersectionality of the LGBT community, and how the community has, in large part, erased…

    Read More The LGBT community needs to support all its membersContinue

  • Victimhood: the identity that just keeps taking
    Social connections | Strategizing for success

    Victimhood: the identity that just keeps taking

    ByAlison Hayes May 29, 2020May 27, 2020

    When I started writing last week’s post on ableism, I recognized that the single behavior that bothered me most was this man’s insistence that his disability was the heart of the problem, followed by his insistence that he was the victim. This post digs into the victim identity, and the emotional shift from having been…

    Read More Victimhood: the identity that just keeps takingContinue

  • Disabled people can practice ableism too
    Social connections

    Disabled people can practice ableism too

    ByAlison Hayes May 22, 2020July 4, 2022

    Ableism is a large issue and one that occurs within the community as well as outside of it. Over the past few months I have been processing through a series of negative interactions and now that the issue is concluded, feel that I can glean some important lessons from it and move myself forward from…

    Read More Disabled people can practice ableism tooContinue

  • It’s genetic, part 3: Inherited Tendencies and Sensitivities
    Strategizing for success | Social connections

    It’s genetic, part 3: Inherited Tendencies and Sensitivities

    ByAlison Hayes March 27, 2020March 24, 2020

    This is the third of three posts on how to answer the question ‘is it genetic?’ While the first post discussed spontaneous changes that just happen(genetic conditions), and the second discussed specific known hereditary genetic mutations, this third post digs into hereditary conditions, which are likely influenced by our genes, but either is the result…

    Read More It’s genetic, part 3: Inherited Tendencies and SensitivitiesContinue

  • It’s genetic, part 2: Testable Inheritable Conditions
    Strategizing for success | Social connections

    It’s genetic, part 2: Testable Inheritable Conditions

    ByAlison Hayes March 20, 2020March 20, 2020

    This is the second of three posts on how to answer the question ‘is it genetic?’ While the first post discussed spontaneous changes that just happen, as exemplified by the loss or addition of chromosomes, this second post digs into what many people tend to focus on with the ‘is it genetic’ question: traits that…

    Read More It’s genetic, part 2: Testable Inheritable ConditionsContinue

  • It’s Genetic, part 1: Losing or adding chromosomes
    Strategizing for success | Social connections

    It’s Genetic, part 1: Losing or adding chromosomes

    ByAlison Hayes March 13, 2020March 11, 2020

    So, ‘it’s genetic’ or ‘it may be genetic’ are terms that get tossed around a lot about many different conditions. This post is the first of three-part series about gene-related abnormalities. The three big categories I’m going to write about are abnormal numbers of chromosomes, identifiable genetic abnormalities, and inherited genetic tendencies. For all three…

    Read More It’s Genetic, part 1: Losing or adding chromosomesContinue

  • A Chronic Voice February 2020
    Strategizing for success | Social connections

    A Chronic Voice February 2020

    ByAlison Hayes February 14, 2020February 7, 2020

    Once more, I am participating in A Chronic Voice’s monthly linkup.  February prompts: ditching, invigorating, playing, joining, looking. This post muses about two major topics: BiRequest and turning my blog into a business. I’m excited about both things, and hoping that the steps I am taking in both spaces will lead to a better future for…

    Read More A Chronic Voice February 2020Continue

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Meet The Author

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Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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