Managing doctor care during this lull in Covid-19
Strategizing for success | Taking care of yourself

Managing doctor care during this lull in Covid-19

I don’t know about where you live, but here in New Jersey, we’re experiencing a decrease in Covid-19 spread. With everybody (over 16) willing to get vaccinated able to get shots, the numbers are going down a bit and it’s becoming time to think about catching back up with Al and my medical care. I’m…

This isn’t normal: why we often ignore early symptoms of our condition(s)
Strategizing for success | Taking care of yourself

This isn’t normal: why we often ignore early symptoms of our condition(s)

In late March, I went out for a walk on the nature trail by my house. As I crossed one of the several bridges along the route, I noticed something unusual—a flash of silver as a fish (specifically, a bunker) surfaced, gasping, and then rolled back over into the water. This is not normal fish…

Functional Neurological Disorder treatment programs are worth the effort!
Strategizing for success | Taking care of yourself

Functional Neurological Disorder treatment programs are worth the effort!

I participated in the MoRe—Motor Reprogramming—program in Louisville, Kentucky, in 2016. It was the single most helpful treatment I have ever had, and may ever have, for my Functional Neurological Disorder(FND). In this post, I want to go over why this is a treatment option, how it works, and how you can find a similar…

Accepting my Functional Neurological Disorder diagnosis
Strategizing for success | Taking care of yourself

Accepting my Functional Neurological Disorder diagnosis

April is FND Awareness Month, and April 13 is FND Awareness Day. I’m going all in on that, and I’ll be focusing this post and month on the process of accepting your diagnosis—and illustrating it with my FND experiences (and what I’ve picked up from fellow FNDers inside of discussion groups). I’m also using A…

Caregiving: Do I need to hire a caregiver?
Strategizing for success | Taking care of yourself

Caregiving: Do I need to hire a caregiver?

While the term caregiver is bandied about a lot in the disabled community, it’s important to distinguish between paid and unpaid caregiving. Many of us have been caregivers in a less official capacity at various points in our lives—caring for children, parents, siblings, or friends during temporary or long-term health problems. Most of us have…

Participating in discussion groups about your condition
Strategizing for success | Taking care of yourself

Participating in discussion groups about your condition

One of the groups that I’ve been active in over the years has been FND Hope‘s collection of Facebook groups on Functional Neurological Disorder (FND), the condition I was diagnosed with in 2003. There are both risks and benefits to participating in these groups, but generally, I’d argue that they’re worthwhile, especially early on and…

Five ways that recording your health history can improve your life
Strategizing for success | Taking care of yourself

Five ways that recording your health history can improve your life

I have been living with chronic conditions, both physical and mental, since I was a kid. I’ve been encouraged to write about it, talk about it, think about it, and then put it all aside and move forward with my life. There’s good reasons for doing these things. Today, I want to talk to you…

Lessons learned from 2020
Strategizing for success | Taking care of yourself

Lessons learned from 2020

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are beginning, symbolizing, enduring, revealing, gracing. As it is January, I’m going to write about the concepts these words bring up for me and what lessons I’ve learned from 2020. Beginning the new year with new medication coverage The headache started in…

How low expectations get me through the holidays
Taking care of yourself | Strategizing for success

How low expectations get me through the holidays

I don’t know about you, but I tend to feel a bit depressed around the holidays. I definitely know that a big part of it is how strongly I associate this time of year with my father’s death. I’ve got a long history with depression and have learned that I tend to mentally string together…

Recognizing my progress, despite the challenges this year has brought
Strategizing for success | Taking care of yourself

Recognizing my progress, despite the challenges this year has brought

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are exhausting, exciting, socializing, indulging, and cutting. Like most people, Covid-19 had a large impact on my life, and not always in expected ways. Join me in processing just what changed this year and the lessons I’ve learned from that. Fear is…