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  • The challenge of selecting your best healthcare plan
    Strategizing for success | Taking care of yourself

    The challenge of selecting your best healthcare plan

    ByAlison Hayes October 9, 2020October 12, 2021

    Open Enrollment is starting soon, and with all of the shakeups that have come with this year, you may be dealing with a different or new set of decisions to make in regards to your or a family member’s participation in the US healthcare system. If you aren’t sure what type of plans may be…

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  • A person showing their belly with a large scar down the middle. Around this car are words that describe trama
    Strategizing for success | Taking care of yourself

    Medical trauma: a shared experience within the disabled community

    ByAlison Hayes September 18, 2020February 1, 2022

    I took a deep breath, put my mask on, and limped into the office. My fingers shifted, tightening so my fingertips touched my palm, squeezing, relaxing. They shot out, stretched to their fullest extent. Some stayed that way, others shifted. I was aware of this, but not consciously telling them to do so. My teeth…

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  • 2 young women chat over beer. One of them sit on a barstool and other uses her wheelchair.
    Overcoming Obstacles | Taking care of yourself

    Internalized Ableism: the struggle to accept our own worthiness

    ByAlison Hayes September 11, 2020July 19, 2022

    People with disabilities are often marginalized by society – and there are a variety of reasons for it. The social model of disability focuses on how instead of viewing our symptoms as failures on our part, it’s time to start looking at what assumptions society has made that make participating in the greater community more…

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  • woman wearing cloth masks stands at the door of her business, holding a sign reading come in, we are open
    Strategizing for success | Taking care of yourself

    Rebuilding my life in the time of COVID-19

    ByAlison Hayes September 4, 2020October 24, 2020

    So, it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are feeling, grueling, tempting, running, and mending. This month, I’m taking stock, processing life lessons, and looking ahead towards creating an even better future for myself. Feeling the need to reinvest in myself It’s been a weird year with COVID-19 and…

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  • Losing my father to systemic racism
    Taking care of yourself | Overcoming Obstacles

    Losing my father to systemic racism

    ByKay Uchi July 16, 2020July 17, 2020

    This post was written by Kay Uchi, a black friend of mine(Alison). She is also disabled, and we decided to share some of her experiences with systemic racism in medical care. What follows is her story. The day my father died I remember my mom knocking on my bedroom door and asking me to examine…

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  • Stress-related health conditions
    Overcoming Obstacles | Taking care of yourself

    Stress-related health conditions

    ByAlison Hayes July 10, 2020March 19, 2023

    There are many conditions that are directly associated with stress. While that includes most, if not all, mental illnesses, it also includes very physical conditions such as diabetes, many forms of coronary disease, and asthma, to name a few. Functional Neurological Disorder(FND) is also considered a stress-related condition. Today, let’s talk about how stress works,…

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  • Managing my disrupted life
    Taking care of yourself | Overcoming Obstacles

    Managing my disrupted life

    ByAlison Hayes July 3, 2020July 2, 2020

    So, it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are bothering, demanding, nourishing, telecommunicating, and tolerating. This month, it flowed out as the stresses I’m acknowledging in my life and how I’m muddling through. The negative ramifications of the word ‘bothering’ The word bothering, well, bothers me. The Miriam-webster definition…

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  • Let’s talk about stress during COVID-19
    Overcoming Obstacles | Taking care of yourself

    Let’s talk about stress during COVID-19

    ByAlison Hayes May 14, 2020August 19, 2020

    The biggest thing in the news for the past several months has been COVID-19, a novel coronavirus that has been spreading around the world and killing hundreds of thousands of people. In some ways, I’m very tired of covering it – in others, because it is constantly on my mind, I’m feeling like I need…

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  • Living through the COVID19 pandemic
    Strategizing for success | Taking care of yourself

    Living through the COVID19 pandemic

    ByAlison Hayes May 1, 2020May 4, 2020

    t’s that time again, I’m writing in response to A Chronic Voice’s monthly linkup.  May prompts: upbringing, forseeing, panicking, accessing, soothing Times are scary and stressful.  I am at a strange place in my life, where I am doing what I can to stay positive and hopeful, while at the same time feeling like not too much…

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  • Alison smiling, wearing a FNDHope shirt and holding a sign reading "I am #FNDAware, are you?"
    Taking care of yourself | Functional Neurological Disorder(FND) | Overcoming Obstacles

    My FND diagnosis journey

    ByAlison Hayes April 24, 2020June 9, 2023

    After some thought, I decided that the most appropriate way to end FND Awareness month was to talk about my early experience with FND – from when my symptoms started to when I actually recieved my FND diagnosis. This is a journey that took a bit over 3 years, so that you have a sense…

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Meet The Author

Picture of Alison Hayes

Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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