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Emotional expectations: recognizing the patterns

Once more, I am participating in A Chronic Voice’s monthly linkup. words: Regrouping, Investigating, Boosting, Setting & Reviving Today, I want to talk about how very strongly we can be affected by other people and other people’s emotions.  I want to talk about boundaries and expectations, and how multigenerational damage can work. I am using…

Friends in need: protecting yourself while helping others
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Friends in need: protecting yourself while helping others

There are times when your friends may call on you for help or support. This may be a time of crisis for them, or during a time of extra stress. Usually, when asked, people on some level want to say yes, it’s part of how humans are socialized. Now that you are living with a…

Getting diagnosed with Functional Neurological Disorder

Getting diagnosed with Functional Neurological Disorder

I have a condition known as Functional Neurological Disorder(FND).  I was diagnosed in 2003, when people were even less aware of the condition than they are now.  It had a different name(Conversion Disorder) and was labeled as a form of mental illness, rather than as a neurological condition.   In my case, Conversion Disorder remains…

Functional Neurological Disorder(Are you #FNDaware?)
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Functional Neurological Disorder(Are you #FNDaware?)

Once more, I am participating in A Chronic Voice’s monthly linkup. words: Tiring, Educating, Receiving, Giving & Quieting FND Awareness week begins on Sunday April 7, so I wanted to get things off to a good start. Reading over these words, I immediately thought about my experience with FND and as a disability rights advocate(as…

Food allergies and sensitivities: when you need to remove food options
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Food allergies and sensitivities: when you need to remove food options

For many people, their diagnosis includes some behavioral or meal-planning changes, either due to learning of allergies or food sensitivies, or due to newly recognized(or recently more severe) health concerns requiring a change in diet, such as heart-healthy eating or diabetes management. Whatever the reason, changing eating habits is hard. The more extreme the change,…

Thoughts on scheduling your medications
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Thoughts on scheduling your medications

Most of us managing disabling conditions find ourselves also needing to take medications. I talk about medication management and drug interactions on other posts, but I wanted to take this moment to point out that your food needs and meal planning may have to take your medications into consideration as well. If you aren’t used…

Taking care of yourself: ways to perform radical self-care
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Taking care of yourself: ways to perform radical self-care

You are an important and valuble person in and of yourself. Some people have trouble believing this after becoming disabled or having a severe injury or illness, but I am here to remind you that you are still special and that you still deserve to be happy! This post is all about taking care of…