Black woman with short, natural hair reads over a document at her desk.
|

Health Insurance Plans and the disabled community

October through December is Open Enrollment season for the US Health Insurance system. This is the time when people can choose, change, or adjust their healthcare plan. With about 55% of the population covered through private employers, this is when employees have the right to examine their options and select the offered plan that best…

Alison in Bi mask at Poor People's Campaign rally 8/2
|

Poor and disabled: Participating in the Poor People’s Campaign’s Activism with a Disability

I’ve been active during the time I’ve taken off from posting. One of my biggest efforts was a multi-day trip to Washington, DC to join the Poor People’s Campaign in a push for congressional reforms through civil disobedience. We had a simple set of demands for the Senate, which has, of yet, been unfulfilled. Our…

turquoise background, with white text: "I did it my way: Guiding your own medical wellness journey: off label LDN for fibromyalgia). The right side of is a picture of a bottle of prescription medication
|

I Did It My Way! Directing Your Wellness Journey

I met Katie a year or two ago. As she and I discussed our health experiences, I found myself especially fascinated with how she discovered LDN and how helpful she’d found it. As she shared her experience of negotiating her treatment with her doctor, I thought it would be a great piece of experience to…

Black and white photo cropped close to focus on the smiling face of Sarah Malm. She has shoulder-length light colored hair, is white, and is wearing plastic-framed glasses.
|

Grieving While Chronically Ill and “Childless Not By Choice”

I’ve gotten to know Sarah Malm over the past year or so. She and I are running a Spoonie Coworking Space. She’s a fellow spoonie and an artist who creates lovely greeting cards. We were discussing our experiences of being Childless Not By Choice and I suggested she write this post for me. When it…

Four disabled people of color gather around a table during a meeting. A Black woman sitting on a couch gestures and speaks while the three others (a South Asian person sitting in a wheelchair, a Black non-binary person sitting in a chair, and a Black non-binary person standing with a clipboard and cane) face her and listen.
|

Safe at Work: Disclosure and Protection

This is Michele’s second guest post on my blog – the first also focusing on the disclosure process. She is also part of the Spoonie Entrepreneur School, and is closing out the virtual summit with her talk “Making work work for you” at 12 PM EST today! “Well, I hope you can do the job,”…

Nicole Neer(white woman with short dirty-blond hair) stands, smiling, with her hands in her pockets. She is wearing a blue long-sleeve shirt and smiling
|

Moving Through Medical Trauma

Nicole interviewed me for her Spooniepreneur podcast a couple of years ago, and we’ve clicked. When she suggested collaborating by cross-posting on one another’s blogs, I jumped at the opportunity. We both wrote about medical trauma from our own personal experiences. My post on her blog came out a few days ago, and Nicole and…

three smiling bi people. Alison is on the left(white woman with brown hair and tinted lenses), Godwin upside down in the middle(Asian man with black hair and sunglassess), and Nee on the right(Black woman with her hair natural and up). All three are smiling into the camera. They are lying on their backs, with only their faces visible.
|

Celebrating Pride Weekend as a Queer Disabled Woman

I have been living with Functional Neurological Disorder for the past 20 years. I also realized that I was bisexual about 19 years ago. After I joined BiRequest several years after coming out, I was invited to participate in the Heritage of Pride March in New York City. I loved the experience of marching through…

man with white hair sits in wheelchair in front of a red car. Another man, with "volunteer" written on his T-shirt is pushing the chair.
|

Traveling with a disability: car travel

While some health conditions prevent disabled people from driving, many others don’t. What disabilities prevent driving and which don’t can be surprising. There are many accessibility features available today to allow wheelchair users and people with other mobility limits to drive despite their presumed inability to do so. There also are many advances in automated…