Traveling with a disability: car travel
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Traveling with a disability: car travel

While some health conditions prevent disabled people from driving, many others don’t. What disabilities prevent driving and which don’t can be surprising. There are many accessibility features available today to allow wheelchair users and people with other mobility limits to drive despite their presumed inability to do so. There also are many advances in automated…

Planning in recovery time after losing last summer to Covid-19
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Planning in recovery time after losing last summer to Covid-19

2020 was a rough year, and I’m recognizing the different pressures I’ve had, many of which were caused or magnified by Covid-19. I’m recognizing that while I’ve managed to do a fair bit this past year, I’m now a bit fatigued and low on energy for self-care as well as resistant to following the routines…

A Third Reconstruction: How this House Resolution should help the disabled community
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A Third Reconstruction: How this House Resolution should help the disabled community

As I’ve mentioned in previous posts, I’m an active participant in the New Jersey Poor People’s Campaign. I want to share with you the most recent activity of the campaign and explain both its significance and how it helps us, the disabled community. The Poor People’s Campaign along with House Representatives Barbara Lee and Pramila…

Flying with a disability
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Flying with a disability

You absolutely can fly while managing your condition! While there aren’t generally travel discounts (airlines are private companies), there are rules to help you travel safely, referred to as the Air Carrier Access Act. Your carrier’s services should provide you with supports for your trip, but it is your responsibility to let them know that…

Traveling with a disability: Save yourself spoons and money!
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Traveling with a disability: Save yourself spoons and money!

Traveling in any way can be a relatively large expense, and for those of us with disabilities, it can also take up a disproportionate amount of energy. There are some things you can do now to help you have an easier time when you travel later, whether you’re traveling across town or across the country….

Managing doctor care during this lull in Covid-19
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Managing doctor care during this lull in Covid-19

I don’t know about where you live, but here in New Jersey, we’re experiencing a decrease in Covid-19 spread. With everybody (over 16) willing to get vaccinated able to get shots, the numbers are going down a bit and it’s becoming time to think about catching back up with Al and my medical care. I’m…

This isn’t normal: why we often ignore early symptoms of our condition(s)
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This isn’t normal: why we often ignore early symptoms of our condition(s)

In late March, I went out for a walk on the nature trail by my house. As I crossed one of the several bridges along the route, I noticed something unusual—a flash of silver as a fish (specifically, a bunker) surfaced, gasping, and then rolled back over into the water. This is not normal fish…

Functional Neurological Disorder treatment programs are worth the effort!
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Functional Neurological Disorder treatment programs are worth the effort!

I participated in the MoRe—Motor Reprogramming—program in Louisville, Kentucky, in 2016. It was the single most helpful treatment I have ever had, and may ever have, for my Functional Neurological Disorder(FND). In this post, I want to go over why this is a treatment option, how it works, and how you can find a similar…