I met Katie a year or two ago. As she and I discussed our health experiences, I found myself especially fascinated with how she discovered LDN and how helpful she’d found it. As she shared her experience of negotiating her treatment with her doctor, I thought it would be a great piece of experience to…
I’ve gotten to know Sarah Malm over the past year or so. She and I are running a Spoonie Coworking Space. She’s a fellow spoonie and an artist who creates lovely greeting cards. We were discussing our experiences of being Childless Not By Choice and I suggested she write this post for me. When it…
This is Michele’s second guest post on my blog – the first also focusing on the disclosure process. She is also part of the Spoonie Entrepreneur School, and is closing out the virtual summit with her talk “Making work work for you” at 12 PM EST today! “Well, I hope you can do the job,”…
Nicole interviewed me for her Spooniepreneur podcast a couple of years ago, and we’ve clicked. When she suggested collaborating by cross-posting on one another’s blogs, I jumped at the opportunity. We both wrote about medical trauma from our own personal experiences. My post on her blog came out a few days ago, and Nicole and…
I have known RA Stone for a few years now, and when she offered to write a guest post for me, I jumped at the opportunity. She shares her experiences with medical gaslighting, a cause of medical trauma, in the post below. When I was eight years old, I had one of about a dozen…
I have been living with Functional Neurological Disorder for the past 20 years. I also realized that I was bisexual about 19 years ago. After I joined BiRequest several years after coming out, I was invited to participate in the Heritage of Pride March in New York City. I loved the experience of marching through…
While some health conditions prevent disabled people from driving, many others don’t. What disabilities prevent driving and which don’t can be surprising. There are many accessibility features available today to allow wheelchair users and people with other mobility limits to drive despite their presumed inability to do so. There also are many advances in automated…
2020 was a rough year, and I’m recognizing the different pressures I’ve had, many of which were caused or magnified by Covid-19. I’m recognizing that while I’ve managed to do a fair bit this past year, I’m now a bit fatigued and low on energy for self-care as well as resistant to following the routines…
As I’ve mentioned in previous posts, I’m an active participant in the New Jersey Poor People’s Campaign. I want to share with you the most recent activity of the campaign and explain both its significance and how it helps us, the disabled community. The Poor People’s Campaign along with House Representatives Barbara Lee and Pramila…
I think trains are probably my favorite way to travel. The world goes by at a brisk pace (usually) but you can still see it all. I frequently take a commuter rail to New York City, and we live a short drive from the nearest train station. I also will often take the train down…