2020 was a rough year, and I’m recognizing the different pressures I’ve had, many of which were caused or magnified by Covid-19. I’m recognizing that while I’ve managed to do a fair bit this past year, I’m now a bit fatigued and low on energy for self-care as well as resistant to following the routines…
As I’ve mentioned in previous posts, I’m an active participant in the New Jersey Poor People’s Campaign. I want to share with you the most recent activity of the campaign and explain both its significance and how it helps us, the disabled community. The Poor People’s Campaign along with House Representatives Barbara Lee and Pramila…
I think trains are probably my favorite way to travel. The world goes by at a brisk pace (usually) but you can still see it all. I frequently take a commuter rail to New York City, and we live a short drive from the nearest train station. I also will often take the train down…
You absolutely can fly while managing your condition! While there aren’t generally travel discounts (airlines are private companies), there are rules to help you travel safely, referred to as the Air Carrier Access Act. Your carrier’s services should provide you with supports for your trip, but it is your responsibility to let them know that…
Traveling in any way can be a relatively large expense, and for those of us with disabilities, it can also take up a disproportionate amount of energy. There are some things you can do now to help you have an easier time when you travel later, whether you’re traveling across town or across the country….
It can be a hard decision to make. There are actually two different programs that are often referred to as disability, and while you don’t need to choose which to apply for (they share the same application and are both run by the Social Security Administration), it is important to understand what they are and…
I don’t know about where you live, but here in New Jersey, we’re experiencing a decrease in Covid-19 spread. With everybody (over 16) willing to get vaccinated able to get shots, the numbers are going down a bit and it’s becoming time to think about catching back up with Al and my medical care. I’m…
In late March, I went out for a walk on the nature trail by my house. As I crossed one of the several bridges along the route, I noticed something unusual—a flash of silver as a fish (specifically, a bunker) surfaced, gasping, and then rolled back over into the water. This is not normal fish…
I participated in the MoRe—Motor Reprogramming—program in Louisville, Kentucky, in 2016. It was the single most helpful treatment I have ever had, and may ever have, for my Functional Neurological Disorder(FND). In this post, I want to go over why this is a treatment option, how it works, and how you can find a similar…
As I have mentioned in previous posts, accepting your diagnosis isn’t as easy as it may first sound. For most people, there’s a fair amount of time between when symptoms first occur and when they know what is actually happening inside their bodies. There also is definitely a sense of loss involved in really recognizing…