Participating in discussion groups about your condition
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Participating in discussion groups about your condition

One of the groups that I’ve been active in over the years has been FND Hope‘s collection of Facebook groups on Functional Neurological Disorder (FND), the condition I was diagnosed with in 2003. There are both risks and benefits to participating in these groups, but generally, I’d argue that they’re worthwhile, especially early on and…

Self-diagnosis: perils, pitfalls, and occasionally the appropriate action
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Self-diagnosis: perils, pitfalls, and occasionally the appropriate action

While I’ve talked about how the diagnosis process is one of guessing and checking, I want to emphasis that in most cases, it’s essential to have a doctor be involved in the process. We, as lay people, don’t have access to all the information or tools needed to be in any way sure that our…

Five ways that recording your health history can improve your life
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Five ways that recording your health history can improve your life

I have been living with chronic conditions, both physical and mental, since I was a kid. I’ve been encouraged to write about it, talk about it, think about it, and then put it all aside and move forward with my life. There’s good reasons for doing these things. Today, I want to talk to you…

Lessons learned from 2020
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Lessons learned from 2020

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are beginning, symbolizing, enduring, revealing, gracing. As it is January, I’m going to write about the concepts these words bring up for me and what lessons I’ve learned from 2020. Beginning the new year with new medication coverage The headache started in…

How low expectations get me through the holidays
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How low expectations get me through the holidays

I don’t know about you, but I tend to feel a bit depressed around the holidays. I definitely know that a big part of it is how strongly I associate this time of year with my father’s death. I’ve got a long history with depression and have learned that I tend to mentally string together…

The many challenges Covid-19 has added to the holiday season
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The many challenges Covid-19 has added to the holiday season

While many countries have gotten Covid-19 under control by now, the US has dramatically failed that challenge. We are among the worst countries in the world in terms of both infections and fatalities from this disease. One of the biggest spikes this year was associated with Thanksgiving, which is usually the biggest travel weekend of…

Recognizing my progress, despite the challenges this year has brought
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Recognizing my progress, despite the challenges this year has brought

So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are exhausting, exciting, socializing, indulging, and cutting. Like most people, Covid-19 had a large impact on my life, and not always in expected ways. Join me in processing just what changed this year and the lessons I’ve learned from that. Fear is…

Can you get disability if you have FND?
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Can you get disability if you have FND?

Functional Neurological Disorder (FND) is a relatively common (though rarely properly diagnosed) condition. I was diagnosed in 2003 when it was still being called Conversion Disorder (and labeled as a mental illness rather than a neurological condition). I want to be really clear about this: the condition you have (your diagnosis) is less impactful on…

Can you get married on disability? The reasons I won’t
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Can you get married on disability? The reasons I won’t

While I’ve talked about this a bit previously, I want to dig a bit more into the idea of getting or staying married while on disability coverage. The first and most basic thing that I want to emphasize is that this is a choice and that there’s no automatically right or wrong answer. What there…