Empower yourself by tracking your symptoms!

Empower yourself by tracking your symptoms!

Often when getting diagnosed with a new condition or when participating in discussions about certain conditions, you may hear a symptom tracker mentioned. The trackers come in many different forms and styles, but they can be a very useful tool in terms of both getting a diagnosis and checking the effectiveness of a treatment. If…

My life as a disabled entrepreneur
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My life as a disabled entrepreneur

So it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are incorporating, experimenting, sanitizing, launching, and writing. This months words feel very business-oriented, so I’m going to roll with that feeling. Before I say anything else, though, I want to invite you to join me for a presentation on November 17, at…

Learning to pivot: Recognizing your choices with the greatest impact
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Learning to pivot: Recognizing your choices with the greatest impact

Being disabled or chronically ill is often accompanied by a sense of your world shrinking. There are things that you could do, but now can’t. There are places you could go, but are now more challenging or less fun, or more stressful or difficult. Options seem to decrease, and the world often seems just a…

Understanding medical diagnosis: why it’s all ‘best guesses’
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Understanding medical diagnosis: why it’s all ‘best guesses’

I thought it might be helpful to take a few steps back and dig into how doctors are trained to think about and look at patients, and how they are trained to make diagnoses. This is really important because it helps us understand where missteps and mistakes are more likely to happen and to have…

Being your own boss on disability: mastering your destiny
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Being your own boss on disability: mastering your destiny

As I’ve mentioned on previous posts, you can work while on SSI or SSDI. There are programs, like Ticket to Work and Vocational Rehab programs that can help with the process. However, the reality is that while they can give you information about working, they often are only prepared to help you with calculations related…

The challenge of selecting your best healthcare plan
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The challenge of selecting your best healthcare plan

Open Enrollment is starting soon, and with all of the shakeups that have come with this year, you may be dealing with a different or new set of decisions to make in regards to your or a family member’s participation in the US healthcare system. If you aren’t sure what type of plans may be…

Voting in the time of Corona
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Voting in the time of Corona

So, it’s once more time for A Chronic Voice’s monthly linkup. This month’s words are producing, acquiring, switching, disappointing, and forming. Here in the US, it’s election season, and it’s a strange one thanks in part to Covid-19. It has been a really strange and stressful year, and I am extremely concerned about the outcome of…

Disabled Rights: Vote like your life depends on it!
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Disabled Rights: Vote like your life depends on it!

I have participated in every election since I’ve legally been able to. I feel really fortunate to be able to say that. I’m deeply aware of the privledge behind that, not only due to my whiteness, but also because I’ve lived in areas with minimal waits, and my disability doesn’t require any special accomodations in…

Medical trauma: a shared experience within the disabled community
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Medical trauma: a shared experience within the disabled community

I took a deep breath, put my mask on, and limped into the office. My fingers shifted, tightening so my fingertips touched my palm, squeezing, relaxing. They shot out, stretched to their fullest extent. Some stayed that way, others shifted. I was aware of this, but not consciously telling them to do so. My teeth…

Internalized Ableism: the struggle to accept our own worthiness
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Internalized Ableism: the struggle to accept our own worthiness

People with disabilities are often marginalized by society – and there are a variety of reasons for it. The social model of disability focuses on how instead of viewing our symptoms as failures on our part, it’s time to start looking at what assumptions society has made that makes participating in the greater community more…