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  • A Latinx disabled woman and an Asian disabled woman chat and sit on a couch, both holding coffee mugs. An electric lightweight mobility scooter rests on the side.
    Social connections | Strategizing for success

    Let me tell you about Hours Well Spent!

    ByAlison Hayes February 5, 2021February 5, 2021

    So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are uniting, defining, allocating, educating, saving. I have wanted to create this project for years, and now it’s looking like I may have found the right folks to help me make it a reality. I’m super-excited about it and want to explain…

    Read More Let me tell you about Hours Well Spent!Continue

  • an orange slice on a dark yellow background. Half of the orange is covered by white pills
    Fabulous food | Strategizing for success

    Food can be medicine too: the power and danger of special diets

    ByAlison Hayes January 29, 2021March 8, 2022

    One of the things you’ll find if you start researching medical conditions is that there are often dietary suggestions made—things to add (or remove) from your diet, suggestions for what you should (or shouldn’t) eat, and suggestions for when and how to eat. It can easily become overwhelming, and it can also put your health…

    Read More Food can be medicine too: the power and danger of special dietsContinue

  • A South Asian person in a wheelchair brings mini cupcakes out on a platter to four other excited disabled people of color. They are all sitting around a rooftop deck.
    Strategizing for success | Taking care of yourself

    Participating in discussion groups about your condition

    ByAlison Hayes January 22, 2021January 23, 2021

    One of the groups that I’ve been active in over the years has been FND Hope‘s collection of Facebook groups on Functional Neurological Disorder (FND), the condition I was diagnosed with in 2003. There are both risks and benefits to participating in these groups, but generally, I’d argue that they’re worthwhile, especially early on and…

    Read More Participating in discussion groups about your conditionContinue

  • a stethescope is in the foreground, with a computer behind it. Hands are visible, typing on the computer.
    Dealing with Doctors | Strategizing for success

    Self-diagnosis: perils, pitfalls, and occasionally the appropriate action

    ByAlison Hayes January 15, 2021March 14, 2022

    While I’ve talked about how the diagnosis process is one of guessing and checking, I want to emphasize that in most cases, it’s essential to have a doctor be involved in the process. We, as laypeople, don’t have access to all the information or tools needed to be in any way sure that our interpretation…

    Read More Self-diagnosis: perils, pitfalls, and occasionally the appropriate actionContinue

  • Close-up of a Filipinx woman with a filtering face mask, sitting at a table with notebook and pen. She has colorful flower earrings and headphones on while looking into the distance.
    Strategizing for success | Taking care of yourself

    Five ways that recording your health history can improve your life

    ByAlison Hayes January 8, 2021February 5, 2024

    I have been living with chronic conditions, both physical and mental, since I was a kid. I’ve been encouraged to write about it, talk about it, think about it, and then put it all aside and move forward with my life. There are good reasons for doing these things. Today, I want to talk to…

    Read More Five ways that recording your health history can improve your lifeContinue

  • Alison smiles at the camera
    Strategizing for success | Taking care of yourself

    Lessons learned from 2020

    ByAlison Hayes January 1, 2021December 31, 2020

    So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are beginning, symbolizing, enduring, revealing, gracing. As it is January, I’m going to write about the concepts these words bring up for me and what lessons I’ve learned from 2020. Beginning the new year with new medication coverage The headache started in…

    Read More Lessons learned from 2020Continue

  • blurry picture of a Christmas tree with blue lighting
    Taking care of yourself | Strategizing for success

    How low expectations get me through the holidays

    ByAlison Hayes December 25, 2020December 16, 2021

    I don’t know about you, but I tend to feel a bit depressed around the holidays. I definitely know that a big part of it is how strongly I associate this time of year with my father’s death. I’ve got a long history with depression and have learned that I tend to mentally string together…

    Read More How low expectations get me through the holidaysContinue

  • surgical mask is held by the elastic on a peg by a door. Everything in the shot is painted green, with the words 'take care' painted in red on the door, on level with the body of the mask.
    Social connections | Strategizing for success

    The many challenges Covid-19 has added to the holiday season

    ByAlison Hayes December 18, 2020December 23, 2020

    While many countries have gotten Covid-19 under control by now, the US has dramatically failed that challenge. We are among the worst countries in the world in terms of both infections and fatalities from this disease. One of the biggest spikes this year was associated with Thanksgiving, which is usually the biggest travel weekend of…

    Read More The many challenges Covid-19 has added to the holiday seasonContinue

  • Recognizing my progress, despite the challenges this year has brought
    Strategizing for success | Taking care of yourself

    Recognizing my progress, despite the challenges this year has brought

    ByAlison Hayes December 11, 2020December 21, 2020

    So it’s once again time for A Chronic Voice’s monthly linkup. This month’s words are exhausting, exciting, socializing, indulging, and cutting. Like most people, Covid-19 had a large impact on my life, and not always in expected ways. Join me in processing just what changed this year and the lessons I’ve learned from that. Fear is…

    Read More Recognizing my progress, despite the challenges this year has broughtContinue

  • me, sitting and looking at a pond
    Getting Government assistance | Functional Neurological Disorder(FND) | Overcoming Obstacles

    Can you get disability if you have FND?

    ByAlison Hayes December 4, 2020November 20, 2023

    Functional Neurological Disorder (FND) is a relatively common (though rarely properly diagnosed) condition. I was diagnosed in 2003 when it was still being called Conversion Disorder (and labeled as a mental illness rather than a neurological condition). I want to be really clear about this: the condition you have (your diagnosis) is less impactful on…

    Read More Can you get disability if you have FND?Continue

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Meet The Author

Picture of Alison Hayes

Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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