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    Increasing your independence | Strategizing for success

    The Seven Steps of Accepting Your Diagnosis

    ByAlison Hayes April 16, 2021February 18, 2022

    As I have mentioned in previous posts, accepting your diagnosis isn’t as easy as it may first sound. For most people, there’s a fair amount of time between when symptoms first occur and when they know what is actually happening inside their bodies. There also is definitely a sense of loss involved in really recognizing…

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  • A South Asian person in a wheelchair brings mini cupcakes out on a platter to four other excited disabled people of color. They are all sitting around a rooftop deck.
    Strategizing for success | Taking care of yourself

    Participating in discussion groups about your condition

    ByAlison Hayes January 22, 2021January 23, 2021

    One of the groups that I’ve been active in over the years has been FND Hope‘s collection of Facebook groups on Functional Neurological Disorder (FND), the condition I was diagnosed with in 2003. There are both risks and benefits to participating in these groups, but generally, I’d argue that they’re worthwhile, especially early on and…

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  • Close-up of a Filipinx woman with a filtering face mask, sitting at a table with notebook and pen. She has colorful flower earrings and headphones on while looking into the distance.
    Strategizing for success | Taking care of yourself

    Five ways that recording your health history can improve your life

    ByAlison Hayes January 8, 2021February 5, 2024

    I have been living with chronic conditions, both physical and mental, since I was a kid. I’ve been encouraged to write about it, talk about it, think about it, and then put it all aside and move forward with my life. There are good reasons for doing these things. Today, I want to talk to…

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  • How embracing your diagnosis improves your life
    Taking care of yourself | Strategizing for success

    How embracing your diagnosis improves your life

    ByAlison Hayes February 28, 2020November 8, 2022

    I’ve noticed that some people in various disability-related groups put a huge emphasis on their diagnosis as an identity and that many disability groups are siloed based upon diagnosis. I understand it, but it also worries me. I understand the need to belong and be accepted, and that part of that process when it comes…

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  • Communicating about your condition
    Social connections | Strategizing for success

    Communicating about your condition

    ByAlison Hayes October 12, 2018May 30, 2019

    When you are newly disabled or just starting to realize that you have a condition that will have long term effects on you, it’s important for you to understand what you have, how it works, and what your loved ones may be able to do to help manage your situation. This isn’t necessarily easy, as…

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  • Hi, I’m Alison!
    Strategizing for success | Taking care of yourself

    Hi, I’m Alison!

    ByAlison Hayes March 4, 2018April 23, 2021

    I was diagnosed with fine motor coordination issues at the age of 4, depression when I was 9 years old, and with conversion disorder(now better called Functional Neurological Disorder) when I was 23.  I spent my entire scholastic career being a special needs student and was frequently in honors and advanced placement classes.   Yes,…

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Meet The Author

Picture of Alison Hayes

Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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