Once more, I am participating in A Chronic Voice’s monthly linkup. Wondering, Repeating, turning, desiring, getting Wondering As a bi person with a chronic and likely life-long condition, I have put time into wondering what informs my partner selection, and wondering about the values others who share either or both identities express. You may be…
So I have to say that meditation was not something that came naturally to me. It wasn’t something I did as a child, or something I got into as I grew up. In fact, I didn’t really try to meditate seriously until a couple of years ago. I wish I had started sooner, but am…
Once more, I am participating in A Chronic Voice’s monthly linkup. words: Tiring, Educating, Receiving, Giving & Quieting FND Awareness week begins on Sunday April 7, so I wanted to get things off to a good start. Reading over these words, I immediately thought about my experience with FND and as a disability rights advocate(as…
I talked recently about deciding what events to attend as part of your holiday celebrations this holiday season. This post is a companion for it, but with a focus on what you can do before and during an event to help yourself have the most possible fun! Plan ahead to minimize your stress the day…
When you are newly disabled or just starting to realize that you have a condition that will have long term effects on you, it’s important for you to understand what you have, how it works, and what your loved ones may be able to do to help manage your situation. This isn’t necessarily easy, as…
There is a lot of information out there about what you can’t do – working after you have applied for disability is risky. Furthering your education is also a dicey proposition. During those months to years of waiting for a decision to be reached, what can you do? What should you do? Do you really…
Nearly 20% of the global population has a sleep disorder. Sleep disorders can be debilitating, and sleep disorders make other conditions worse. With our daily patterns and routines disrupted, the only thing that would be surprising would be if our sleep cycles weren’t affected by our disabilities! Why is sleep so important? When you are asleep, your…
One of the big differences between ’being sick’ and dealing with a chronic condition is how your relationships and activities are affected. If you’re sick, staying home and resting up IS a great idea. Sure, you may miss one or two activities you were looking forward to, but you’ll feel better and get back into…