Guiding others towards a healthier understanding of your condition
Strategizing for success | Social connections

Guiding others towards a healthier understanding of your condition

Healthier interactions start with the recognition that you are, indeed, human too. Just because you have some form of disabling condition or identity doesn’t make you more(or less) of a person than you were prior to your symptoms or diagnosis. Unfortunately, both you as the person managing your condition, and your family and friends need…

Recognizing and countering ablism from friends or family
Social connections

Recognizing and countering ablism from friends or family

Something both Al and I have had to manage is different responses by different family and friends to our conditions and situations. I think most people with disabling and/or chronic conditions have experienced these stresses: family members or friends who may insist that it’s nothing or that you are making up your health problem, other…

Disability and loneliness: importance of maintaining social connections
Social connections | Strategizing for success

Disability and loneliness: importance of maintaining social connections

One of the big differences between ’being sick’ and dealing with a chronic condition is how your relationships and activities are affected.  If you’re sick, staying home and resting up IS a great idea.  Sure, you may miss one or two activities you were looking forward to, but you’ll feel better and get back into…