Functional Neurological Disorder treatment programs are worth the effort!
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Functional Neurological Disorder treatment programs are worth the effort!

I participated in the MoRe—Motor Reprogramming—program in Louisville, Kentucky, in 2016. It was the single most helpful treatment I have ever had, and may ever have, for my Functional Neurological Disorder(FND). In this post, I want to go over why this is a treatment option, how it works, and how you can find a similar…

Caregiving: Do I need to hire a caregiver?
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Caregiving: Do I need to hire a caregiver?

While the term caregiver is bandied about a lot in the disabled community, it’s important to distinguish between paid and unpaid caregiving. Many of us have been caregivers in a less official capacity at various points in our lives—caring for children, parents, siblings, or friends during temporary or long-term health problems. Most of us have…

Can you get disability if you have FND?
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Can you get disability if you have FND?

Functional Neurological Disorder (FND) is a relatively common (though rarely properly diagnosed) condition. I was diagnosed in 2003 when it was still being called Conversion Disorder (and labeled as a mental illness rather than a neurological condition). I want to be really clear about this: the condition you have (your diagnosis) is less impactful on…

Medical trauma: a shared experience within the disabled community
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Medical trauma: a shared experience within the disabled community

I took a deep breath, put my mask on, and limped into the office. My fingers shifted, tightening so my fingertips touched my palm, squeezing, relaxing. They shot out, stretched to their fullest extent. Some stayed that way, others shifted. I was aware of this, but not consciously telling them to do so. My teeth…

How psychologists and psychological tools help FND patients
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How psychologists and psychological tools help FND patients

Functional Neurological Disorder is a common, but infrequently diagnosed neurological condition that appears to be on the boundary between neurology and psychiatry. When I was diagnosed in 2003, it was labeled as a psychiatric condition that required a neurologist and a psychiatrist to diagnose. Since the mid-2000’s there has been a huge push by both…

FND and the placebo effect
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FND and the placebo effect

Functional Neurological Disorder is a neurological condition, but how it works and the processes associated with it are right on the boundry between neurology and psychiatry. While characterizing it as neurological is very helpful for those of us with the condition and for the researchers studying it, the fact remains that many aspects of FND…

It’s genetic, part 3: Inherited Tendencies and Sensitivities
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It’s genetic, part 3: Inherited Tendencies and Sensitivities

This is the third of three posts on how to answer the question ‘is it genetic?’ While the first post discussed spontaneous changes that just happen(genetic conditions), and the second discussed specific known hereditary genetic mutations, this third post digs into hereditary conditions, which are likely influenced by our genes, but either is the result…

How embracing your diagnosis improves your life
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How embracing your diagnosis improves your life

I’ve noticed that some people in various disability-related groups put a huge emphasis on their diagnosis as an identity and that many disability groups are siloed based upon diagnosis. I understand it, but it also worries me. I understand the need to belong and be accepted, and that part of that process when it comes…