Should I go to the emergency room: the trauma factor
Overcoming Obstacles | Dealing with Doctors

Should I go to the emergency room: the trauma factor

My phone rang. ‘Hey, honey?’ my partner Al said “I need you to call mom and dad about this, but I want you to make sure they don’t freak out” “Freak out about what?” I asked, instantly concerned. “Well, they called an ambulance for me. I slipped and I think I might have dislocated my…

Guiding others towards a healthier understanding of your condition
Strategizing for success | Social connections

Guiding others towards a healthier understanding of your condition

Healthier interactions start with the recognition that you are, indeed, human too. Just because you have some form of disabling condition or identity doesn’t make you more(or less) of a person than you were prior to your symptoms or diagnosis. Unfortunately, both you as the person managing your condition, and your family and friends need…

Regaining a sense of control
Taking care of yourself

Regaining a sense of control

Once more, I am participating in A Chronic Voice’s monthly linkup. words: paying, attending, organizing, plunging, knowing Plunging into a new diagnosis In early September, I was plunged into the world of migraines. Prior to August, my neurologist(who specializes in FND) and I had suspicions that some of the occasional headaches, nausea, and excruciating arm pain…

Weathering the storms of life
Strategizing for success | Taking care of yourself

Weathering the storms of life

Once more, I am participating in A Chronic Voice’s monthly linkup. words: researching, dating, finding, recounting, and recycling. Sometimes in life, you get hit with a perfect storm of stress – and sadly it looks like from mid-august well into September, I’m in that position. There are times when even if you are doing your best…

Building a partnership with your doctor: good doctor-patient communication
Dealing with Doctors | Strategizing for success

Building a partnership with your doctor: good doctor-patient communication

Doctor and patient communication should be a two-way street, not one. While your doctor has medical expertise and training in how to recognize and treat medical conditions, you are the expert on your body and your needs. As a patient, it’s your responsibility to gather good information about yourself and your history and symptoms, and…

Striking the balance: financing my social life at the cost of unusual symptoms
Strategizing for success | Taking care of yourself

Striking the balance: financing my social life at the cost of unusual symptoms

Once more, I am participating in A Chronic Voice’s monthly linkup. words: financing, exchanging, controlling, motivating, and capturing. I’m currently in an odd place in my life where several aspects of my life are going incredibly well, but I am also experiencing symptoms that have been and could be relatively debilitating. I’m working on keeping…

My intersectional identity: bi and disabled
Strategizing for success | Social connections

My intersectional identity: bi and disabled

Once more, I am participating in A Chronic Voice’s monthly linkup. Wondering, Repeating, turning, desiring, getting Wondering As a bi person with a chronic and likely life-long condition, I have put time into wondering what informs my partner selection, and wondering about the values others who share either or both identities express. You may be…

Getting diagnosed with Functional Neurological Disorder
Dealing with Doctors

Getting diagnosed with Functional Neurological Disorder

I have a condition known as Functional Neurological Disorder(FND).  I was diagnosed in 2003, when people were even less aware of the condition than they are now.  It had a different name(Conversion Disorder) and was labeled as a form of mental illness, rather than as a neurological condition.   In my case, Conversion Disorder remains…

Functional Neurological Disorder(Are you #FNDaware?)
Strategizing for success | Social connections

Functional Neurological Disorder(Are you #FNDaware?)

Once more, I am participating in A Chronic Voice’s monthly linkup. words: Tiring, Educating, Receiving, Giving & Quieting FND Awareness week begins on Sunday April 7, so I wanted to get things off to a good start. Reading over these words, I immediately thought about my experience with FND and as a disability rights advocate(as…