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  • wheelchair user at a subway station with their back to the photographer.
    Increasing your independence | Strategizing for success

    Traveling with a disability: Save yourself spoons and money!

    ByAlison Hayes May 21, 2021July 12, 2021

    Traveling in any way can be a relatively large expense, and for those of us with disabilities, it can also take up a disproportionate amount of energy. There are some things you can do now to help you have an easier time when you travel later, whether you’re traveling across town or across the country….

    Read More Traveling with a disability: Save yourself spoons and money!Continue

  • a manicured back yard stands on the bank of a tidal creek. Clumps of dead fish lie at the waterline
    Strategizing for success | Taking care of yourself

    This isn’t normal: why we often ignore early symptoms of our condition(s)

    ByAlison Hayes April 30, 2021May 26, 2021

    In late March, I went out for a walk on the nature trail by my house. As I crossed one of the several bridges along the route, I noticed something unusual—a flash of silver as a fish (specifically, a bunker) surfaced, gasping, and then rolled back over into the water. This is not normal fish…

    Read More This isn’t normal: why we often ignore early symptoms of our condition(s)Continue

  • Alison smiles. She has short brown hair in thi picture and is wearing glasses. Bison are visible behind her
    Functional Neurological Disorder(FND) | Strategizing for success | Taking care of yourself

    Accepting my Functional Neurological Disorder diagnosis

    ByAlison Hayes April 2, 2021September 29, 2022

    April is FND Awareness Month, and April 13 is FND Awareness Day. I’m going all in on that, and I’ll be focusing this post and month on the process of accepting your diagnosis—and illustrating it with my FND experiences (and what I’ve picked up from fellow FNDers inside of discussion groups). I’m also using A…

    Read More Accepting my Functional Neurological Disorder diagnosisContinue

  • picture of a white man with long brown hair pulled back in a ponytail. The view is cropped at the shoulders, and he's wearing a gray collared shirt and a dark tie. He has a hint of a smile on his face in this formal picture
    Dealing with Doctors | Overcoming Obstacles

    The pain of losing a great doctor

    ByAlison Hayes February 26, 2021March 3, 2021

    On Tuesday, I had an appointment with a new neurologist. The neurologist I’d been seeing, Dr. Schneider, was on medical leave due to a cancer diagnosis. I’d had a telehealth appointment with Dr. Schneider in June, and he’d been a little pale and skinnier than usual (he was always a pretty slender guy), and during…

    Read More The pain of losing a great doctorContinue

Meet The Author

Picture of Alison Hayes

Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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