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  • A snail makes its way across a red running track.
    Strategizing for success | Taking care of yourself

    Pacing: an essential tool for self-care and healing

    ByAlison Hayes January 30, 2023February 1, 2023

    I’m once more participating in A Chronic Voice’s writing prompts. This month’s words are: summarizing, crossing, moving, rebuilding, and expecting. I’ve been thinking about writing about pacing for a while now, and these words felt useful for that process. When the summary is too short So to summarize what most doctors tell their patients: “You…

    Read More Pacing: an essential tool for self-care and healingContinue

  • White woman with shoulder-length curly brown hair walks confidently through a building with large glass windows overlooking trees. Her right leg is prosthetic.
    Increasing your independence | Strategizing for success

    Returning to work after getting on disability: protecting your health

    ByAlison Hayes September 23, 2022September 22, 2022

    For many of us who become disabled, the recognition and acceptance process isn’t easy, and all too often, employment and disability are inextricably linked. For many of us, part of becoming disabled is losing our employment. The grief and loss of becoming disabled is often entangled deeply with the loss of income, and often the…

    Read More Returning to work after getting on disability: protecting your healthContinue

  • a woman in turquoise scrubs holds a stethescope bent to form the shape of a heart in front of her.
    Dealing with Doctors | Functional Neurological Disorder(FND) | Overcoming Obstacles

    Finding the right doctors after being diagnosed with Functional Neurological Disorder

    ByAlison Hayes April 4, 2022September 29, 2022

    Functional Neurological Disorder is a common but poorly understood condition. Being diagnosed with Functional Neurological Disorder isn’t just overwhelming for you as the patient, but it also can be a challenge for your doctor as well. The symptoms look like neurological symptoms(each FNDer may have a different symptom set), but don’t have the usual causes…

    Read More Finding the right doctors after being diagnosed with Functional Neurological DisorderContinue

  • woman looks up through a car window as rain falls down. She has a thoughtful expression on her face
    Getting Government assistance | Overcoming Obstacles

    Should I apply for disability?

    ByAlison Hayes May 14, 2021September 9, 2022

    It can be a hard decision to make. There are actually two different programs that are often referred to as disability, and while you don’t need to choose which to apply for (they share the same application and are both run by the Social Security Administration), it is important to understand what they are and…

    Read More Should I apply for disability?Continue

  • Managing Stress if you go to an ER
    Dealing with Doctors | Overcoming Obstacles

    Managing Stress if you go to an ER

    ByAlison Hayes February 7, 2020February 4, 2020

    If you are not experiencing an immediately life-threatening emergency, please double-check with your doctor if at all possible to see if there is a reasonable alternative to going to the ER. Not only are ER visits substantially more expensive than regular doctor or hospital visits, but they also are spaces where you have almost no…

    Read More Managing Stress if you go to an ERContinue

  • person inside an underground cave, looking up at sublight filtering down
    Overcoming Obstacles | Getting Government assistance

    How filing for disability hurts you(and why you need to do it anyway)

    ByAlison Hayes January 25, 2019May 17, 2022

    I’m not trying to be discouraging or to tell you not to apply.   I have been supported by SSDI(social security disability insurance) for well over 15 years, and I know that my quality of life would be much worse if I were not on this program.   What I do want to do is…

    Read More How filing for disability hurts you(and why you need to do it anyway)Continue

  • man near glass window pane
    Taking care of yourself | Getting Government assistance

    Waiting for disability: what to do with yourself between application and decision

    ByAlison Hayes September 7, 2018December 21, 2021

    There is a lot of information out there about what you can’t do – working after you have applied for disability is risky.  Furthering your education is also a dicey proposition.  During those months to years of waiting for a decision to be reached, what can you do?  What should you do?  Do you really…

    Read More Waiting for disability: what to do with yourself between application and decisionContinue

  • Maintaining mental health while filing for disability
    Overcoming Obstacles | Getting Government assistance

    Maintaining mental health while filing for disability

    ByAlison Hayes June 1, 2018May 4, 2022

    Filing for disability put me in a depressive funk that left me exhausted, and the process of filing the paperwork literally took me weeks because I couldn’t work on it for more than ten to fifteen minutes at a time before I was physically unable to continue.  Filing for disability, in itself, was an emotional…

    Read More Maintaining mental health while filing for disabilityContinue

  • How healthy is your mind? a girl with the left half of her face made up to appear like a skull
    Strategizing for success | Taking care of yourself

    How healthy is your mind?

    ByAlison Hayes May 25, 2018May 27, 2022

    When you are injured or ill, there is a lot of focus on healing your body, but your mind’s health(mental health) is a huge factor in your recovery process. Since this is mental health awareness month I wanted to talk about the relationship between physical and mental health. The question I have for you is…

    Read More How healthy is your mind?Continue

  • Stop mental health stigma!
    Taking care of yourself

    Stop mental health stigma!

    ByAlison Hayes May 4, 2018April 27, 2021

    This month is mental health awareness month! In honor of that, I intend to make sure that my posts for the month have more of a mental health focus. Today, I want to talk about the stigma that is placed on mental health, and what we can do to fight it off. So what is…

    Read More Stop mental health stigma!Continue

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Meet The Author

Picture of Alison Hayes

Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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