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  • Headshot of Alison Hayes, a white soman with shoulder-length brown hair with the occasional gray highlight. She is wearing a blue-green shirt with a v-neck cut. She is wearing tinted glasses and is smiling.
    Increasing your independence | Strategizing for success

    So, I’m writing a book!

    ByAlison Hayes September 19, 2024September 19, 2024

    Thriving While Disabled: Navigating Disability Finances I know that I haven’t written another post in way too long. I do apologize for this, but it’s been for a variety of good reasons. But at the most basic, life happened in a way that drew my focus away from writing posts, and I had less time…

    Read More So, I’m writing a book!Continue

  • White woman with shoulder-length curly brown hair walks confidently through a building with large glass windows overlooking trees. Her right leg is prosthetic.
    Increasing your independence | Strategizing for success

    Returning to work after getting on disability: protecting your health

    ByAlison Hayes September 23, 2022September 22, 2022

    For many of us who become disabled, the recognition and acceptance process isn’t easy, and all too often, employment and disability are inextricably linked. For many of us, part of becoming disabled is losing our employment. The grief and loss of becoming disabled is often entangled deeply with the loss of income, and often the…

    Read More Returning to work after getting on disability: protecting your healthContinue

  • woman looks up through a car window as rain falls down. She has a thoughtful expression on her face
    Getting Government assistance | Overcoming Obstacles

    Should I apply for disability?

    ByAlison Hayes May 14, 2021September 9, 2022

    It can be a hard decision to make. There are actually two different programs that are often referred to as disability, and while you don’t need to choose which to apply for (they share the same application and are both run by the Social Security Administration), it is important to understand what they are and…

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  • Tatiana(white woman with honey-brown hair) smiling while holding her rose breasted cockatoo. The picture is cropped at chest-height.
    Getting Government assistance

    How-tos and Questions About Filing for Disability

    ByTatiana Froes March 19, 2021March 19, 2021

    I am honored that Alison invited me to write a post about filing for disability from an attorney’s perspective. I hope to answer some of the most common questions claimants ask in regards to filing for disability. But first, let me introduce myself. My name is Tatiana Froes. I am a disability attorney practicing disability…

    Read More How-tos and Questions About Filing for DisabilityContinue

  • me, sitting and looking at a pond
    Getting Government assistance | Functional Neurological Disorder(FND) | Overcoming Obstacles

    Can you get disability if you have FND?

    ByAlison Hayes December 4, 2020November 20, 2023

    Functional Neurological Disorder (FND) is a relatively common (though rarely properly diagnosed) condition. I was diagnosed in 2003 when it was still being called Conversion Disorder (and labeled as a mental illness rather than a neurological condition). I want to be really clear about this: the condition you have (your diagnosis) is less impactful on…

    Read More Can you get disability if you have FND?Continue

  • red sign in front of a set of tree trunks. the sign reads: Eat, drink, and be married, with hearts at the beginning and end of the sign, and arrows pointing to the right.
    Strategizing for success | Getting Government assistance

    Can you get married on disability? The reasons I won’t

    ByAlison Hayes November 27, 2020December 11, 2020

    While I’ve talked about this a bit previously, I want to dig a bit more into the idea of getting or staying married while on disability coverage. The first and most basic thing that I want to emphasize is that this is a choice and that there’s no automatically right or wrong answer. What there…

    Read More Can you get married on disability? The reasons I won’tContinue

  • woman in black sleeveless dress sitting on a white surface. She has blue hair with a pink streak on the right side, and her left arm is prosthetic.
    Overcoming Obstacles | Getting Government assistance

    What does it mean to “go on disability”?

    ByAlison Hayes May 8, 2020May 5, 2023

    The honest answer is that there are a lot of possible meanings. The most typical at this point is to receive Social Security Disability Insurance benefits(SSDI) or Supplemental Security Insurance(SSI), but there really are a lot of additional types of “disability” benefits, each of which has its own set of rules, regulations, and durations. This…

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  • the word 'health' spelled out using medication in blister packs, with a stethescope between the 't' and 'h'
    Getting Government assistance | Overcoming Obstacles

    How does Medicare work and how do I get it?

    ByAlison Hayes October 11, 2019November 20, 2023

    We are now approaching the beginning of the open enrollment period for Medicare. The enrollment period runs from October 15 to December 7. This is the time period where we can finalize our plans, adjust our coverage if necessary, and commit to the coverage, and type of coverage, that we will receive for the following year….

    Read More How does Medicare work and how do I get it?Continue

  • How can I work and not lose my Social Security Disability Insurance?
    Overcoming Obstacles | Getting Government assistance

    How can I work and not lose my Social Security Disability Insurance?

    ByAlison Hayes August 9, 2019October 2, 2023

    SSA does actually have an entire program to help people with disabilities return to work.  It is called Ticket to Work.  Whether you are on SSI or SSDI you can request a Ticket to help yourself learn new skills, find work, or rethink your career goals. It’s a voluntary program that will help you with…

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  • four people participating in the disability pride parade - an invisibly disabled black woman holding a sign reading 'Yes, and...", me, holding a sign that reads 'include disabled people in activism', a white woman in a wheelchair holding a sign reading 'the future is accessible, and another white woman beside her wearing a zebra-striped cap.
    Social connections | Strategizing for success

    Advocating for disability rights as a member of the community

    ByAlison Hayes June 21, 2019July 23, 2024

    So often, people with disabilities are pretty much automatically ignored, put down, or ostracized by our communities. There are a lot of contributing factors, but I want to talk about some of those factors here today, as well as discuss what we can do(as individuals) to help the greater disabled community. People with disabilities are…

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Meet The Author

Picture of Alison Hayes

Alison Hayes

As a person with a sometimes-invisible illness that straddles neurology and psychiatry (Functional Neurological Disorder), I've dealt with a lot of the stigma surrounding physical and mental illnesses and both visible and invisible illnesses. I want to help other people with disabilities to regain perspective and control over their lives through manageable steps and make their lives better, one step at a time.

Photography courtesy of Terry Manning(terrymakes.com)

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Disclaimer

I am not a doctor, lawyer, or therapist.  I am a person with a disability who has learned a lot about many aspects of living life with a disabling condition.  My posts are intended as jumping off points connected to the best knowledge I could find.  I cannot be held responsible for the decisions you make or the actions you take.  

For your reading pleasure

  • Functional Neurological Disorder(FND) (13)
  • Overcoming Obstacles (83)
    • Dealing with Doctors (31)
    • Getting Government assistance (36)
  • Strategizing for success (137)
    • Fabulous food (4)
    • Increasing your independence (13)
    • Social connections (33)
    • Taking care of yourself (76)
  • Uncategorized (3)

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